Jump!

A few days ago, my husband had me watch a video clip of a motivational speech by Steve Harvey of the Family Feud.  Steve Harvey video   He starts by saying that every successful person has one thing in common.  They have all jumped.  They took a leap of faith.  They realized what their God given gifts were and they jumped in head first.

I truly believe that when each of us enters this world, God blesses us with certain gifts and talents.  Some of us may have one, others may have 5 or 10.  Once we identify our gifts, we need to jump.  Steve Harvey said that the only way we can soar is to jump and pull the cord.  Once we do, we have to be determined to keep going through the doubt, rejection and pain.  Eventually we will come out on the winning side.

ANNULAR 4
flysussex.com
Think about the inventors of the past and how far they had to jump to create the light bulb, the automobile, plastic, or Apple Computers.  One of the best biographies I have ever read is on Steve Jobs.  Where would we be right now if Bill Gates and Steve Jobs didn’t jump?  I wouldn’t be able to share my heart with you on my MacBook or even find a way to deliver it.  In reality, most of us are not as brilliant as Thomas Edison, Albert Einstein or Stephen Hawking, but we can make a bigger impact than we think.  It wasn’t smooth sailing even for the geniuses of our time.  They jumped, overcame and soared.

steve jobs quotes
steve jobs quotes
We are all more capable of making a positive impact than we realize.  My son, Christian, wanted to make a difference.  He wrote a good part of a spy novel but stopped when his disease started to accelerate.  He wasn’t able to join the football team or play basketball but he did play his clarinet until he didn’t have the strength to sit up and cope with the pain.  He spent the last 18 months of his life tilted back in his chair but he still hardly ever complained.  His courage and grace impacted everyone he came into contact with.

What about the rest of us?  What are we capable of?  I have come to realize that I have a knack for photography and writing.  My sister overcame great obstacles to earn her G.E.D., becoming a volunteer fire fighter and EMT and is now in the best shape of her life.  How many lives would have been lost if she never jumped?  I encourage you to watch this video and to believe that God fulfills all of his promises.  He wants us to soar.  At some point, we have to ask ourselves if we are living or simply existing.

535890_2199036831741_1580093076_n
Despite the physical limitations of Duchenne Muscular Dystrophy, the boys earned their GED’s in 2012.
I can hardly think of a time when God did not get me through difficult times.  After we lost Christian, I felt like I was falling, skinning my knees and having my heart ripped out every single day.  It’s still not easy, I still have moments when the reality of his death practically knocks me down, but God has helped me up from day one.  Steve says that our parachute does not open right away.  It most certainly did not for me until recently and it didn’t for my sister either.  I am pretty sure that most olympic athletes skinned their knees many times.

I encourage you to jump.  Stay with it until you soar.  Believe in yourself because God does and I believe in you too.  Do it.  Jump!

 

Hit me Like a Bomb

As I was preparing lunch this afternoon, Hit me Like a Bomb by Third Day came on.  Lyrics video From the first time I heard this song, which wasn’t too long after Christian passed away, the lyrics became personal.

You hit me like a bomb
And everything I’m used to
Is suddenly gone
Sorry to accuse you
Do you know what you’ve done
When you hit me like a bomb

Hear the sound of the sirens ringing
See the world of a life that’s changing
Well you hit me like a bomb
I was scared and I started running
Can’t say I never saw it coming
When you hit me like a bomb

(La la la la la la la la…)

You hit me like a bomb
Everything’s changing
It didn’t take long
For you to start rearranging
Everything that I’ve known
When you hit me like a bomb

(lyricsmode.com)

I knew Christian wasn’t doing well.  His overall health was declining rapidly over the last 6 months of his life, whether I wanted to see it or not.  We knew we had to take him to the doctor and probably the hospital, but we didn’t think we were going to lose him that night almost 10 months ago.  When I went into his room to wake him up for the day, I was hit by the biggest bomb ever.  Our life as we knew it – forever changed.

I lost my son, my best friend, my hero and my life as I knew it.  Everything changed, including how I looked at life.  Life is still changing, rearranging.  Everything I ever knew up to that point no longer mattered.

As time has moved on, we have been healing in our own ways but we will never be the same.  Christian made us appreciate the small things, even something as simple as seeing a bird outside of the window or a spot of sunlight on the wall.  Because of him, no matter how much the darkness enfolds me, I will NEVER give up.  I have moments when I feel angry and I question God about Christian’s pain and suffering.  I remind myself of God’s love, provision, mercy and grace so the anger isn’t able to fester and make me bitter.  I would rather heal and live the life Christian so much wanted to live but wasn’t able to.

This song by Third Day has a rock sound to it and plenty of energy.  Let me know what you think!

Never stop reaching for the sky!

Never stop reaching for the sky!

I’m baaack! I must admit, I was pretty shocked when I noticed how long it had been since I lasted posted. I convinced myself that I did not have time and did not need to write in my blog. It is amazing how if we tell ourselves something enough times, we will really start to believe it. A phrase I have seen many times states that “we become what we think about”. Our attitude really does make our world. It can make or break our day.

th

I have recently joined the gym after wanting to go back for several years. It was humbling after my first workout. I ended up very sore and tired. With anything new, it’s easy to fall prey to fearful thoughts. I payed for an entire year up front and I have asked myself several times if that was a mistake. I have been in the same routine for so long that it has become a rut. I spent so many days at a time at home caregiving, cleaning etc. that when I actually did get out, I was a little shocked.

The truth is, I need the exercise, we all do. It keeps us strong and less prone to injury and combats depression and anxiety. I know it will improve my life so long as I keep on keeping on! As I continue on this journey, doors will open, opportunities will present themselves and the walls I have built up will begin to fall.

th

A lesson in poetry

The road less traveled

The road less traveled

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveller, long I stood
And looked down one as far as I could
To where it bent in the undergrowth;

Then took the other, as just as fair,
And having perhaps the better claim,
Because it was grassy and wanted wear;
Though as for that the passing there
Had worn them really about the same,

And both that morning equally lay
In leaves no step had trodden black.
Oh, I kept the first for another day!
Yet knowing how way leads on to way,
I doubted if I should ever come back.

I shall be telling this with a sigh
Somewhere ages and ages hence:
Two roads diverged in a wood, and I–
I took the one less traveled by,
And that has made all the difference

…Robert Frost

I was never very good at interpreting poetry in school but “The road less traveled” is one that I have been able to relate to a good portion of my life.  One that many of us have.  We face choices every single day and most of the time, not having the slightest idea what the outcome will be.  We try to see into the future as far as we can, thinking of every single way a situation can turn out.  We rely on our gut instinct, or pray about it, hoping it will all turn out okay.

I am often in this situation each day in dealing with the boys’ MD.  Whether the decision is big, such as whether a surgery will be worth the risk; or small, such as what to give the boys for dinner, we stand at the edge of the wood like Robert Frost did.  We have made good decisions, such as keeping the boys on a wholesome, mostly vegetarian diet to reduce inflammation; and we have made bad decisions, such as staying in a hotel room with unaccessible features that ended up causing prolonged back pain for Christian.  With every choice we all do our best and that is all that matters.  I firmly believe, and have experienced, that God helps us out of difficult situations that were the result of a bad choice because He knows that our choices are made out of love.  I also firmly believe that every choice we have made, good and bad, has brought the boys to where they are today – happy, healthy and full of vigor for life!

The path we are on is also the less traveled one.  We have made many choices that we knew would require more work but did it anyway because we wanted to do what was best for the boys.  I read a saying that basically said that when we make the hard decisions today, it will make for a better tomorrow.  This has been true in our case.  We opted for the boys to have spinal fusion to correct their scoliosis and as a result, they sit up better in their chairs and their lungs can fully expand.

Drew before his spinal fusion surgery at Shriners
Drew before his spinal fusion surgery at Shriners
IMG_1311
After spinal fusion

We will continue to face big and small decisions and an unknown future.  This can create a lot of fear and a good amount of uncertainty, but if we do the best we can with what we have today, it will all turn out just fine.  All I have to do is see one of the boys’ beautiful smiles to know this.