Respect for the Graves

Recently, I saw a story on the news about Andrew Lumish, a man who has spent the last 5 years cleaning headstones of U.S. Veterans in Tampa, Florida.  His story touched a place in my heart because our oldest son is buried at Highland Cemetery.  We have a family plot with a beautiful headstone so it gives me comfort to know that we will all be together out there one day.

My husband stopped by to visit our boy last week and noticed that the newly occupied plot behind ours was in disarray.  They did not have a headstone yet, just a temporary marker along with some flowers and other sentimental items.  We also had a temporary marker on ours for months as headstones are very costly.  Most of the items, along with the marker, were laying down flat like the caretakers just ran over them with a mower.  Dave walked over and fixed it so the family wouldn’t find it in such a state.  I cannot imagine how I would feel if I went to the cemetery to visit our boy only to find that someone destroyed everything.

There were some young men doing groundskeeping while Dave was there.  He said that they were talking very loudly to each other over the headstones and swearing a lot.  This made me very sad.  I go to the cemetery for peace and comfort and obviously this was not the day to go.  I only hope that they respect the light saber, Star Wars figurines, and Darth Vader sign that we have at Christian’s grave.

As a teenager, I thought it was cool to go to the cemetery at midnight with my friends so we could tell stories and scare each other.  I never disrespected any of the headstones but I also didn’t think about what a cemetery really is – a place where we can go to feel comfort, grieve, or even talk to those we have lost.  I admit that I talked to Christian a lot more during the year after he passed away.  Now when I go, I tell him how much I love and miss him and what we have been up to.  I also spend time in silence.  There are many magpies, western meadowlarks, robins and other birds who keep me company too.  I don’t like the sight of bird droppings on the headstone but I like to think that they are watching over my boy.

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Luckily, Highland Cemetery locks the gates at night.  It is in the most beautiful area where the sky is big and the hills are rolling all the way to the horizon.  I only hope that people will follow the example of Andrew Lumish and my husband and respect the graves of those who have passed on before us.

 

Could Have Been Me

Today’s song of the day is Could Have Been Me by The Struts.  When I listened to the lyrics, I wanted to jump up and shout the lyrics along with the song.

Don’t wanna live as an untold story
Rather go out in a blaze of glory
I can’t hear you, I don’t fear you
I’ll live now cause the bad die last
Dodging bullets with your broken past
I can’t hear you, I don’t fear you now

Wrapped in your regret
What a waste of blood and sweat
Oh oh oh

I wanna taste love and pain
Wanna feel pride and shame
I don’t wanna take my time
Don’t wanna waste one line
I wanna live better days
Never look back and say
Could have been me
It could have been me
Yeah

Don’t wanna live as an unsung melody
I’d rather listen to the silence telling me
I can’t hear you, I won’t fear you
Don’t wanna wake up on Monday morning
The thought of work’s getting my skin crawling
I can’t fear you, I don’t hear you now

We all have songs that speak to our hearts.  This particular song has since the first time I heard it.  I think that three of the worst phrases along with “I can’t” are phrases that include the words coulda, woulda and shoulda.  I use these words far more than I ought to and I want to say them less.  If I live to be an old woman, I want to look back and know that I lived the best days I could in service and love.  I hope to be able to look back and know that I changed the world in some way, even by encouraging and uplifting others.

We all have a song in our hearts and many of us are afraid to live out the melodies that God places in us.  Fear can only keep us from living with purpose and without regret if we allow it to.  Our pasts cannot keep us from having an excellent finish.  When we refuse to allow fear and mistakes of our past to keep us from pursuing our dreams and showing up each and every day as our best selves, then we will not have to say “It could have been me.”

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Beautiful Hands

My grandmother of 92 years is in hospice care.  I drove over to see her last week and was taken aback by how frail she looked.  As I sat next to her and talked to her, I kept looking at her hands.  I thought of everything her hands accomplished during her life – raising three boys; taking care of a home; breeding and raising beagles; growing, picking, and canning massive amounts of vegetables every year; shooting and processing deer every year; raising and caring for rabbits; boarding dogs; creating art and building things; and living a full life.  Her hands became still on her blanket as she slept, and I watched her hands raising up and down to match her breathing as I thought of everything they accomplished during her life.

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Some of my fondest memories are being in grandma’s backyard or in her garden.

Grandma only said what needed to be said and she said it with truth and boldness.  I honestly cannot remember her ever making small talk.  The funniest thing I remember hearing her say to date was about a woman sitting in the waiting room with her as she waited for the eye doctor:  “She talked and talked for 30 minutes and didn’t say a thing.”  Grandma listened and I know this because she always had a remedy or an idea for just about anything.  When Dave had to go into the hospital for a stomach ulcer, her advice was to have him eat some lamb.  When I wrote to her about our finches and the eggs that were being laid, she gave me tips on caring for a female that was having a hard time passing the eggs.  I told grandma once how much I enjoyed hearing chickadees and she told me that she always knew when a deer was around because the chickadees would start chirping.  I am thankful for every moment I have had with her and I will always try to follow her example in many areas of my life.

Equally amazing is my sister and our good friend, both of whom are caring for my grandma.  The sacrifices they are making, the dedication, and the love they are pouring out for her truly humbles me beyond words.

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We are not here on this earth just to exist, waiting for Friday every week and dreading Mondays.  We are here to love, create, serve, worship, lift others up, and bless one another.  One of the greatest gifts God gives us is the opportunity to care for others – whether it is hands on caregiving, offering a smile to a stranger or encouragement to a co-worker, donating our time or resources to people in need or simply being who God created us to be with no fear holding us back – only holy boldness and beautiful hands.

Staying Healthy as a Caregiver

As parents, we all know the value of taking care of ourselves.  As a parent of a special needs child it is even more important.  The physical, emotional, and mental demands can easily cause burnout if we neglect ourselves.  I have learned a hard lesson with this over the last year.

For over 10 years, I was blessed with great health and strength as I cared for my two sons.  Due to the progression of Duchenne Muscular Dystrophy, their needs only increased over the years.  As their needs increased, my free time became more sparse so I had to make an effort to make the time count.  I tried getting out once a week to my favorite coffee shops or the bookstore to enjoy my favorite novel, going for walks on the River’s Edge Trail, or reading the Sunday paper with a cup of freshly brewed coffee.  I learned to cherish the small things and I still do.

I was diagnosed with Cervical Dystonia two months ago and for the first time ever, I was unable to care for my son.  It was a very painful, humbling feeling and I am thankful my husband did most of his care.  I have learned a lot going through this experience.  I learned that it is far easier and not as expensive to prevent illness than to have to heal from it.  Dystonia is genetic and it is possible that I may not have been able to prevent it, but like many illnesses it can be overcome.  I wanted to share some simple, yet powerful steps we can take daily to stay healthy and have the energy to keep up with the sometimes overwhelming demands of caregiving.

For many years, I got up well before I needed to get the boys started for the day.  Before Christian passed away, it took 3 1/2 to 4 hours to get them ready for the day.  It was far easier to accomplish this on a daily basis when I knew that I at least did my personal care and took some time for myself already.  This time can be spent doing the things we enjoy such as sitting quietly with a cup of coffee, reading the paper, in prayer, listening to music, or exercising.  Every afternoon, I would lay the boys down for 30 minutes of rest time from their wheelchairs and take that time for a cup of tea and a good book.  If I had extra time before preparing dinner I would use that time to write a letter to a loved one, send a greeting card, practice playing the piano or sit outside in the sun and watch the birds.  It is amazing how energized I would feel after taking even 20 minutes to read a book I enjoy.

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This is the last photo taken of Christian and me together.

After losing Christian, I lost my way.  All of a sudden I had all of this time I never had before, and for a long time I felt guilty for trying to do something for myself.  I have since realized that it is an honor to Christian’s memory to pursue my dreams because he never gave up on his.  Christian read books up until the last 2 weeks of his life.  He tilted back in his wheelchair, turned his head sideways on his headrest, and read on his iPhone.  We all have gifts given to us from God and if we do not invest in them, we are throwing them away.  The world ends up not being as wonderful as it could be with our gifts.

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Christian won an award in high school for his excellent work overcoming his disability to create art.

Pursuing our dreams and goals also encourages our children to never give up despite their physical limitations and it also instills some normalcy into their daily lives.  We have more energy to enjoy life and we become strong inside so we can better face the uncertainty associated with complications from the diagnosis.

Please share some ideas you may have about taking care of yourself and enjoying life to the fullest as we care for our loved ones.

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Scars Strengthen Us

I read a story about four seeds in a book by Rev J. Martin called God’s Grace Is On The Way:  Let go, embrace love.  To sum it up, four seeds were taken up by the wind and dropped into a clearing in the jungle.  Their dream was to grow to be beautiful trees, towering over the jungle.  Three monkeys also lived in the clearing that liked to amuse themselves by throwing bananas at any plant that tried to grow.  This made it very difficult for the seeds to take root.  The seeds agreed that it would be better to wait for the group of monkeys to move on before they attempted to grow.

Weeks passed and one seed thought she should at least attempt it.  When she tried to grow, the monkeys pelted her with bananas.  She tried and tried, even after the other seeds asked her to stop trying.  She didn’t give up but kept trying harder and harder as the monkeys continued to attack the plant.

Then, one day, the monkeys hit her with bananas but none made her stoop over.  The little tree had taken so many blows that she was now full of hard knots and scars.  Her slim trunk had gotten thicker and more resistant and could now withstand the impact of a banana.  The monkeys were unable to uproot her.  She grew until she became the most majestic tree in the jungle.

When we are dealt a bad hand in life or end up facing all sorts of difficulties, it is easy to give up on our dreams and goals.  It could be bad news from the doctor, the loss of a loved one or financial difficulty that puts us in the middle of one of life’s storms.  The storms can be so bad that it is difficult to see the other side of the lake and we wonder how we will ever make it across to the other side.

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After recently being diagnosed with a chronic illness, I wasn’t sure if I could pursue my dreams any longer.  I thought about the loss of my son, Christian, his brother, Andrew,  who continues to fight his muscular dystrophy and my husband who lives with a heart condition.  After being pelted with several bunches of bananas I set my dreams aside.

When we make it to the other side of life’s storms we become more resilient and strong.  God can use us in amazing ways when we let Him give us the strength to keep putting one foot in front of the other when life gets hard.  We can then be an inspiration to others who are dealing with their own difficulties.

We are all given gifts from God to make the world a better place.  Some of us sing, play instruments, serve, sew, write or draw.  Some of us are given the gift of inspiration.  It is amazing what a kind word or a little encouragement can do for the spirit of another.  No matter what difficulties come our way, we must never give up on the gifts that God graces us with.  He knows how important our gifts are so He will give us the strength we need to make it through life’s storms.

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365 New Beginnings

As I look out the window at the last day of 2017, I am thankful for the beauty and perfection on display.  The snow is deep and smooth and it covers everything in a graceful blanket of white.  The sky is a soft blue with whispy clouds and the birds gently eat at the feeders.

Like many, I am ready to say goodbye to this year and hello to 2018.  I have never been one for resolutions or crash diets, but I do look forward to a new beginning.  I am ready to leave the difficulties of this year behind and carry with me the lessons learned and the things God has blessed me with into 2018.  God has blessed me with His strength and mercy every single morning that I opened my eyes.  His Word has given me guidance through difficulties and challenges and has given me comfort on my most painful days.  He has given me a loving, supportive husband and a wonderful son.  I was a bride’s maid in my niece’s wedding this past summer, and my husband and I were able to take a long overdue vacation to sunny California.  God has given me His comfort when I missed my son the most – if I would wake up dreaming that Christian is still with us or if I dreamt of losing him again.  I have learned the importance of balance and rest of the mind, body and soul and how loving ourselves is the foundation to everything in our lives.  By loving ourselves, we become more open to receiving the love of God.  God pours His love into our hearts until they overflow so we can in turn love others.

What are my intentions for the new year?

To love even more…

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To thank God for each new day and for the miracles He so graciously bestows upon us…

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To invest in the gifts God has given me so I can bless others with them…

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To serve others more…

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To do more to brighten another’s day, whether it’s a smile, holding open the door, letting a vehicle go ahead of me in traffic or sending a greeting card or letter…

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To keep my thoughts centered on the good things in life while letting go of the rest…

Each day is a new beginning, a chance to enjoy God’s mercy and love while experiencing His goodness which He promises us in His Word.  I wish all of you a peaceful, blessed 2018 and that all your hopes and dreams come to life while love flourishes in your hearts and daily lives.

 

 

The Beauty of the Lord

On the evening before Christian passed away he told me that all he wanted was to be able to look at things without being in pain.  He wanted to watch his finch, Kiwi, hop around or relax in his cage.  He wanted to gaze at birds at the feeder, beautiful sunsets, and stars in the night sky.  Little did I know these were some of the last words he would say to me.

Tomorrow marks three years since Christian left this world to be with the Lord.  Many think that with time it gets easier, but in some ways that is not so.  It adds on another year since I have heard his voice and seen his sweet face.  The ache in my heart feels stronger at moments and I remember things I would rather forget.

A few days ago I came across Psalm 27:4  “One thing have I asked of the Lord, that will I seek, inquire for, and require:  that I may dwell in the house of the Lord all the days of my life, to behold and gaze upon the beauty of the Lord and to meditate, consider, and inquire in His temple.”  Even though I have read and meditated on this verse before, it moved me to tears.  I remembered what Christian said and I wondered if he knew he was going to die.

This scripture, among others, moved me to make more of an effort to gaze at the beauty of God’s creation and capture it in photographs.  I find beauty in seeing the dark outline of tree branches against an autumn sunset, a patch of light on the tract books at work, a house finch resting on the shepherd’s hook, flowers on my table, squirrels playing around a tree at the park and Canadian geese lying down in the grass.  In honor of my son I encourage you to take a photo of something beautiful and post it on social media.  Noticing God’s abundant blessings and sharing them encourages others to focus on the goodness of God and also spreads more joy.