My son

DSCN0086It has been well over a year since my last post.  So much has changed, especially of late.  On October 27, in the early hours of the morning, my oldest son, Christian, went to heaven.  My heart broke into a million pieces that day.

These past weeks have been a blur.  I have felt more pain and emotion than I ever thought possible, sometimes in the span of 5 minutes. I have also felt parts of my soul stir that I didn’t even know existed.  For the first few days, I couldn’t even think straight enough to pray or read scripture.  Thankfully I have been able to focus more and I have made sure to keep God’s Word close by.  I have relied on God more heavily than I have ever before and prayed more than ever.

They say that when we lose someone we love, we are never the same.  We have to adjust to a new normal.  I can honestly say I am not the same. I am broken, tired, confused, angry and lost.  On the other hand, I have felt love grow in my heart – love for Christian, God, my husband and my younger son, Andrew.  You see, Christian was more than a son.  He was my best friend (wow, I just cried for the first time in public).  He was also my rock, my inspiration.  He left me everything that was good about him – good and perfect.  He left me his courage, love, more love, his beautiful smile, his humor and his love of music.  I can hardly listen to a song without thinking of him.

The past year has been difficult but I am thankful for all of it – the constant caregiving, sore legs and feet from standing all day, the fear, aggravation.  It all made me a better person and taught me to enjoy the little, often overlooked things in life – a sparrow on the feeder, the full moon, a funny shaped cloud in the sky or sunlight on the wall.  Christian made me realize that I do not need material possessions to be happy and satisfied.  In Christian’s last year of his life, he only spent less than $100 on himself.  He enjoyed buying gifts for others and watching their expressions when they opened them.  Christian was in a lot of pain the last year and a half of his life and wasn’t able to go out of the house much.  As a result, he read books on his iPhone, played video games (Metroid and racing games were his favorites), listened to some good music and watched movies.  Tom Cruise was his favorite actor and he watched Live, Die, Repeat the weekend before he passed.  His love of NASCAR inspired me to love it too.  I so wanted his favorite driver, Jeff Gordon, to win the Chase but instead I bawled as he duked it out with my driver, Brad Keslowski.  What a mess.

I know that eventually, I will cross the stormy sea of grief and I will surely lean into the storm so I can keep moving ahead.  God will be with me every step of the way.  As I heal, I will be inspired by Christian.  He will always be with me until I see him again.  He is inspiring me to keep listening to music, especially vinyl, start drawing and painting and play the piano again.  He inspires me to continue taking care of myself and my husband and son.  He inspires me to help others and bless others, just as he did every single day of his life.  Not a person came away from Christian without being moved my his love, grace and smile.  I will love him for all time.  I will be posting on my blog more and I hope I will inspire you and move you.  I love you and thank you for reading and I hope a part of Christian will also be with you.

 

 

Ma Haney

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Years ago, my husband’s grandmother from Tennessee, Dona Haney, told me that I needed to write a book to tell of our everyday experience and struggles with muscular dystrophy.  I thought it sounded like a brilliant idea but something that I would need to hold off on for a while.  Well, maybe this could be the beginning!

Dona and Dave’s grandfather, Gene Haney, have driven all the way up here from Tennessee several times to visit.  They are in their 80’s and enjoy traveling.  Dave has always called them Ma and Pa.  Ma, despite her congestive heart failure and diabetes, has continued doing what she enjoys such as going to the Smokey Mountains, attending family reunions and weddings, traveling all the way to Montana and California and spending a lot of time with family.

Even though it was tiring and they had to stay in a hotel while they were here, Ma and Pa made it over for the boys GED graduation this past spring!  It was a wonderful time.

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Our neighbors, Len and JoAnn, came over to celebrate with us as they usually do for special events.  I was playing the Gene Autrey radio station on Pandora (since Len likes a little “C & W” as he calls it) and him and Pa were seeing who could guess what song was on.  It was great!

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Although Len and Pa had only spoken once before on a previous visit, they really hit it off!  People from their generation are more easy going I guess!

I wanted to share this with you because it was Ma who inspired me years ago to tell our story.  She is an inspiration to me in so many ways, Pa too.  They worked hard through life to earn everything they own, they are always willing to help others and they are a blessing.  Before they left this past spring, Pa’s advice to me was to not take life so seriously because it goes by too fast!  God bless and enjoy the rest of your Sunday all!

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Take two!

IMG_0201Hi!  I’m Lisa!  I am a mother, wife, daughter, caregiver and friend.  These roles I put myself into are good and rewarding, but the most important role is to be me.  Creating this blog is just the beginning and I look forward to sharing it with you!  To be honest, this is the second running of a blog that only lasted a couple of days.  Why?  Because I convinced myself that I do not have time for this.  What is that phrase?  Something about needing to make the time?  Truth is, I was making excuses for not taking care of myself, which is easy to do, especially in my role as a caregiver to my two awesome sons!  Will I not be a better caregiver and set a good example for others, offering inspiration, by simply diving on in and not looking back?

I have often told myself that I cannot make a difference because I am home so much.  This is simply not true.  Do we not make a difference by being all we can be, all God created us to be?  Do we not make a difference by serving with our hearts on fire and loving others?

Like everyone else, I have dreams.  Dreams of running marathons, writing books and doing something really big.  This is a good thing but I have let it make me lose sight of who I can be today, right now.  Bloom where I am planted.  The road I am on may eventually meet up with the road where these big dreams are the destination, but if not, that is okay too.

For those of you that read my short lived blog, thank you and bless you.  And for the rest, God bless you and I am excited to walk this path with you!

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