50 Years
When most of us turn 50, we are not suprised to see grey hairs sprouting out, have more trouble getting up off of the floor, or be added to the AARP mailing list (I was not impressed with this one). What I was not expecting was losing my father. He passed away on November 16th after a lengthy illness and my heart will never be the same.
During the weeks that followed, my husband was a huge source of support. One day when the grief was especially painful, Dave reminded me that as hard as it was to lose him, I had 50 years with him. This changed my perspective dramatically.
For 50 years, I had the most wonderful father I could ask for, a father that always took care of me and my sisters and molded us into what we are today. Some of the most wonderful qualities that I see in my sisters and myself are from him. I have so many wonderful memories that far outweigh the troubling times. Memories of camping, fishing, hunting, archery tournaments, watching Clint Eastwood westerns, goofing off around the house, going on vacation to Arizona and California and driving to many places throughout Montana.
There is so much I want to share but that would make this into a novel-sized blog post. Over the past few months, some memories have been more vivid than others. One memory is when my husband and I got married in 1992. My parents and my youngest sister drove up to Rapid City. At the ceremony, Dad looked so handsome in his Army uniform. As we were getting ready to walk down the aisle, I couldn’t move. I looked down and saw that he was standing on my dress! We both had a good laugh before Dad proceeded to walk me down the aisle to give me away to my future husband.
Another memory is from years before when I was a little girl. I decided one day that I was going to help with the laundry. I threw random clothes into the washer and a good portion of them were Dad’s. I let the water run in, threw in some detergent and grabbed the bleach, which I proceeded to pour directly into the wash. When Mom noticed what I was doing, it was too late. Dad’s jeans and some of his favorite button up shirts were covered with white spots. Needless to say, he was pretty angry! Strangely, I do not remember being punished, but seeing the disappointment on Dad’s face when he saw his clothes was punishment enough.
When Dad came to our house to visit during the later years, my husband nicknamed him “Hurricane John”. He would bring his things in and randomly set them all over the house as he walked in. Dad was always an early riser and he made no exceptions when he was away from home. He would wake up not too long after me (I inherited the same quality of getting up early) and he would talk like it was the middle of the day. We would sit at the table with our bibles and talk before I started getting my boys up. I am so blessed to have had those morning chats with Dad.
After I developed a chronic health condition in 2017, I was unable to travel the 109 miles to see my parents. A few months before Dad passed away, I was able to make the drive! I was able to visit with Dad for a few hours that trip and I was also able to make another trip less than a month later. I bent down and hugged him before I left that last time and it was the first time he didn’t get up from his chair to hug me. After he passed away, I had brief feelings of anger at not being able to see him as much while I was unable to drive down. I quickly replaced those feeling with gratefulness. The Lord’s timing is perfect and he healed me enough to be able to see him before he left us.
These memories, along with countless others, will give me comfort when I feel the loss in my aching heart. Those of us who are blessed to have known Dad and loved him will never stop noticing the hole in the world that symbolizes his passing, but the memories, oh the sweet memories, will make us smile.
New blog post coming soon! My next post will be about my dad.
My Comeback
I would like to start this post by thanking everyone who hung in there while I was on a nearly 5 year hiatus. I am so happy to be able to start posting again, even if I have to take baby steps. God bless you all and thank you so much!
In May of 2017, I developed a neurological condition called Spasmodic Torticollis, also known as Cervical Dystonia. After trying unsuccessfully to ease the spasms and pulling with Botox, my condition worsened and I became very sick. This condition took a wrecking ball to every area of my life. I was no longer able to use my computer, read, write, apply makeup or do anything that required my head to be still. Even sitting became nearly impossible, as well as being able to relax and lie still.
Thanks to the good Lord, I came across information about the Spasmodic Torticollis Recovery Clinic in New Mexico. I started a remote program of massage, stretches, weight exercises, dietary guidelines, and attitude work over four years ago today. Like many things that we set out to do, my recovery has taken much longer than I thought and been far more difficult than anything I have every done.
During the first two years of doing the program, I thought for sure it would only take two years at the most to recover. Boy, was I in for a surprise. It took until recently for me to understand why God is taking so much longer than I thought to help me win this battle of battles. God didn’t just want to heal me physically. God wants me to be whole. He wants to heal my spirit, soul, heart, and mind. I tried many things during the first three years of my journey, like trying to make things happen in my own timing. All that did was prolong the process and even put me on an 18 month long detour.
I look forward to sharing with you the things I have learned. Things such as patience, perseverence, trusting in God’s timing and ways, overcoming fear and others. I would have never learned so many of the things I did if I would not have developed Torticollis
I am excited to report that I am about 95 percent recovered! Once I reach full recovery, I will develop a maintenance routine and continue most of what I currently do; however, on a much smaller, more manageable scale. Next will be stepping back into my life, which I am currently working on in small, baby steps. I am hoping to be able to make more consistent blog posts in the near future, but until then, I will do what I can each day and each week.
Am I the same person I was before I lost my health? I think that anyone who has also had to deal with a chronic illness would say, I am definately not the same, but better. Thank you so much for your time and I look forward to beginning my life again!
Land Ho!
Three years ago I was diagnosed with a chronic health condition called Torticollis, also known as Cervical Dystonia. It took about nine months to even receive that diagnosis. I tried Botox injections hoping they would give me relief, but they ended up making me worse. I left my job, and many parts of my life were left in pieces. The simplest of tasks, such as using a computer, eating, and applying makeup, along with the more difficult task of caring for my son, became increasingly difficult to do. By the following Fall, I was sick and had no answers.
As I was reading Diagnosis Dystonia, by Tom Seaman, I came across a chapter where he talked about the Spasmodic Torticollis Recovery Clinic in New Mexico. This program helped him to recover, as well as many others who stayed faithful to the program all the way through. I was very excited after visiting the website and decided to do the remote distance program.
As of today, I have been working hard at the program for two and a half years and I can finally see land in the distance! This has been the most difficult battle I have ever faced, and yet I have grown closer to Jesus Christ and learned things I would have never learned without going through this. I have learned many lessons about patience, faith, perseverance, trusting God, and the importance of knowing God’s love. I have also experienced being at one of the lowest points in my life and in the darkest nights of the soul. This battle of battles will become my testimony.
Sometimes the home stretch is the most difficult and I am working harder than ever on my program to reclaim my life. Just writing in this blog is a huge step towards the finish line! I am so very thankful for all of you for sticking around even though I have not posted for years. My writing is a bit rusty, but I am keeping at it and I know it will be even better in the end.
I look forward to sharing what I have learned and what it means to trust God with everything. I also had to overcome the worst fear I have ever faced. The Lord has given me strength to do the program every day and take care of my adult disabled son. This has not left me with a lot of free time, but in order to achieve victory we have to pay a price for a while. Once I am on the other side of this storm, I will be stronger, healthier and wiser. I will be better able to serve others and be who God created me to be. Like Joyce Meyer said, “Let your test become your testimony.”
What Faith Can Do
This past week I listened to some great Christian music. The song that has been in my head is What Faith Can Do by Kutlass. This song started playing on my Pandora feed just when I needed to hear it. I was feeling some pain and loneliness as I thought about Christian and I was doubting my strength to do all God had given me to do that day.
We all come to places in our lives when we fall on our faces, face health issues or financial uncertainty, or we lose loved ones and face unspeakable heartache. This song is about rising from the ashes to find beauty, never giving up, and not being afraid to take that first step to make a new beginning. God is always by our side and He hears our prayers, even the silent prayer from the heart.
Our valleys may seem deep and unending but the sun will eventually shine. God gives us strength to keep going and because of this we are much stronger than we know. He helps us get through difficulties to get to the side of victory.
Faith gave me courage to get out of bed every morning of the first year after our son passed away. I barely had the strength to pray, but I still did even if it was a simple “God, help me!” Faith gave me the strength to continue caring for my family even though I thought the weight of grief would crush me. Faith helps us see the silver lining during a health challenge and gives us never ending hope. Faith can move the mountains in our lives if we trust God completely.
I hope you enjoy the video. I enjoy almost all of their music and this song will always have a special place in my heart.
Respect for the Graves
Recently, I saw a story on the news about Andrew Lumish, a man who has spent the last 5 years cleaning headstones of U.S. Veterans in Tampa, Florida. His story touched a place in my heart because our oldest son is buried at Highland Cemetery. We have a family plot with a beautiful headstone so it gives me comfort to know that we will all be together out there one day.
My husband stopped by to visit our boy last week and noticed that the newly occupied plot behind ours was in disarray. They did not have a headstone yet, just a temporary marker along with some flowers and other sentimental items. We also had a temporary marker on ours for months as headstones are very costly. Most of the items, along with the marker, were laying down flat like the caretakers just ran over them with a mower. Dave walked over and fixed it so the family wouldn’t find it in such a state. I cannot imagine how I would feel if I went to the cemetery to visit our boy only to find that someone destroyed everything.
There were some young men doing groundskeeping while Dave was there. He said that they were talking very loudly to each other over the headstones and swearing a lot. This made me very sad. I go to the cemetery for peace and comfort and obviously this was not the day to go. I only hope that they respect the light saber, Star Wars figurines, and Darth Vader sign that we have at Christian’s grave.
As a teenager, I thought it was cool to go to the cemetery at midnight with my friends so we could tell stories and scare each other. I never disrespected any of the headstones but I also didn’t think about what a cemetery really is – a place where we can go to feel comfort, grieve, or even talk to those we have lost. I admit that I talked to Christian a lot more during the year after he passed away. Now when I go, I tell him how much I love and miss him and what we have been up to. I also spend time in silence. There are many magpies, western meadowlarks, robins and other birds who keep me company too. I don’t like the sight of bird droppings on the headstone but I like to think that they are watching over my boy.
Luckily, Highland Cemetery locks the gates at night. It is in the most beautiful area where the sky is big and the hills are rolling all the way to the horizon. I only hope that people will follow the example of Andrew Lumish and my husband and respect the graves of those who have passed on before us.
Oh My Hair!
Great Falls is a windy city. When the wind is not blowing, one is liable to tip over from not having that constant head wind holding them up straight. Last summer was one of the worst fire seasons in the state of Montana. During the span of two months, the wind barely blew. It was hot, smokey, and most of us had to stay indoors most of the summer. I have never missed wind as much as I did during the summer of 2017.
We do not live very far from an oil refinery. Most days it smells like sulfur, oil, and all kinds of offensive things. Thanks to the wind, the smell does not carry over to our neighborhood most days. The wastewater treatment plant is a little further than the refinery but on days when the wind doesn’t blow and they are cleaning up some extra nasty waste, the smell makes its way over. Eww.
When I was young, I used to complain about the wind because it messed up my hair. Thank goodness for Aqua Net. I used loads of it. We went on a picnic the other day and with each bite of food I took, I about ate a mouthful of hair too. It’s easy to complain about wind but most of the time I think about what it does for us.
Wind is a clean source of power, it cleans the air and makes the sky look bluer, it helps ships to sail, gives birds a break as they fly in place, flies kites, allows us to paraglide and surf, makes leaves rustle on trees, and helps us to cool off after a hot, summer day.
I don’t use Aqua Net anymore but I am also older and I accept that a perfect hair day is a rarity. I am thankful for tumbleweeds blowing across the prairie in the wind, hair in my face as we drive down the highway, and swaying trees so long as we do not blow away to Oz like Dorothy and Toto. Next time my hairstyle is ruined by the wind or I end up with dirt it my eye I will think about the positive side of wind.
Compassionate Critters
I went to Gibson Park today to go for a short walk. The breeze was blowing constantly, as it always does in Great Falls, but it felt invigorating. As I walked on the oval path around the park, I heard baby chickadees above me as I passed under a tree, saw several squirrels prancing across the grass, and I heard yellow warblers and an American goldfinch.
He stood next to me for a few minutes.
First he peeked around the corner at me.
Afterward, I took a seat on a bench on one of the docks over the pond and watched the waves ripple across the water and the geese and ducks gently float past. After a few minutes, I noticed movement in my peripheral vision. First I saw a tiny head and then the neck and body of a Canadian goose. It was comical because it was like he was peering around a corner to see if I would notice him. Even after he realized that I did not have any food, he stood next to me to look out over the pond. He was so close to me that I could see his brown pupils and the softness of his elongated neck. Occasionally, he would turn around and peacefully observe me. I found this to be very comforting because up until I arrived at the park, I was having a difficult day. I truly believe that animals just get it – they know when we need comfort. I am not just referring to dogs – this is the reason why they are “man’s best friend.” I also mean birds, horses, rabbits, and many other furry critters.
Christian had a zebra finch named Kiwi for several years. Kiwi was a ornery, wild, little fella and Christian would park his wheelchair next to his cage every evening before we covered his cage up with his blanket. He referred to Kiwi as his best friend because he was always there. I think that Kiwi waited to die until the year following Christian’s passing because it would have broken his heart. It was a comfort having Kiwi around after our boy passed away because it gave us a tangible connection to Christian. A few days before Kiwi passed away, he kept hopping to the front of his cage and he would park right under the door and wait for us to come in and pet him. It was so strange because Kiwi was always very wild and didn’t want us to get too close to him. I think it was his way of giving us comfort before he died.
In the months following Christian’s passing, several rabbits hopped onto our back deck and they would sit right in front of the sliding glass door, sometimes looking inside. A few days before Christian passed away, there were close to 20 Eurasian collared doves on our back sidewalk. I have experienced a great amount of comfort from God’s critters over the last few years.
At Christian’s graveside service, we released doves. Our youngest son was able to hold one of the white doves, Sirius, before he released her. He was then able to open the lid on the basket so the rest of the doves could fly out. I first read about the doves in a newspaper article about the funeral services of Deputy Joe Dunn, who was killed in the line of duty. They released doves at his graveside service and he is buried just down the slope from our boy.
God gave us animals for comfort and companionship. Whether it is a cat, dog, parakeet, or birds at our feeder, if we take notice we will see that they really do care about us.
Drew holding Sirius a few days after the funeral.
Grief, Interrupted
The year after Christian passed away was extremely painful, but thanks to the strength and comfort of God, we made it through a day at a time. Dave’s job became extremely demanding in the following month after we lost our boy. He went with the flow for the next several months but by summer, working 14 hour days was not enough for the company, so he had to leave. The following September, Dave suggested I call the company that I worked at before leaving in 2005 to care for the boys’ increasing needs. I called them, dropped off my resume, and everything fell into place. I was terrified because I had been out of the work force for so long but I was also thrilled and very thankful for the opportunity to work for my family again.
About a week into my return to work came the first anniversary of Christian’s passing. Dave suggested that I go to work because the distraction might be good for me. I lasted about five minutes. Over the first few months I experienced a lot of nervousness each morning before I left for work and I started to experience slight anxiety when I performed certain job duties. I thought nothing of it because all jobs come with stress and anxiety. By summer, my anxiety increased and depression started to weigh me down. I started becoming emotional about things that normally would not make me so upset. I began to worry about the most ridiculous things, which fed my anxiety.
I took the second anniversary of Christian’s passing off along with what would be his 22nd birthday. I spent the greater part of that fall in a state of sadness as I remembered the days leading up to his passing. By Christmas my emotional problems worsened and the anxiety led to panic episodes the following spring. I took a few days off and started seeing a counselor. This slowly started to help and I really thought I was going to start feeling like myself again.
About two months later, I started to experience tightness in my neck. I associated it with ergonomics at work and tried carrying things differently, sitting up straighter, etc.. By fall, my neck worsened and the spasms set in. I kept working hard and doing everything I could to keep up with the workload. I also started acupuncture and massage therapy. My condition worsened to such an extent that I was having trouble eating, driving, and putting my makeup on. I did not receive a diagnosis and treatment until March of this year. I was confident that the treatment would help and things would go back to normal again.
The first set of injections only made my condition worse and I had to take a month long medical leave. Before I requested the medical leave I had a major panic episode and my good friend and neighbor stayed with me for a few hours. Before she dropped me off at home she looked at me and said that “my kettle blew.” She said that at the botton of the kettle was grief and stacked on top of that was my illness, worry for my son and husband, and the stress of my career. She said I needed to deal with the loss of my son by joining a grief group and learning about the stages of grief. It was at that point that I realized that I hadn’t been grieving since I returned to work. The fear, anxiety, and massive change I went through interruped the grieving process. I ended up leaving my job shortly after my medical leave.
It is easy to associate depression with loss – losing a child is devastating and I experienced days and moments of sadness that I thought would crush me. Ongoing depression that does not let up, however, is a sign that a person is not grieving in a healthy way. I had days that were harder – the pain felt more raw and I would cry, but I really thought I was moving forward and healing from the loss. There was so much going on in my life, so much change, that the grief and pain ended up buried underneath of it all. Unfortunately, it took an illness to open my eyes and see that I still have some grief work to do. Perhaps this blog post is a way of moving forward.
It may seem easier at the time to run away from the pain, bury it by keeping busy, or to tell everyone we are fine, but in the long run it can have devastating effects on our emotional, physical and spiritual health. I encourage you to reach out to friends, family, your pastor, grief counselors, or write it all down in a journal. Don’t bury your pain. Go through it so the pain doesn’t end up being wasted. Perhaps making it to the other side of difficulties makes us stronger so we can in turn help others who are hurting. Christian was my son, friend, and my teacher. I love him too much to waste the pain of losing him.
The road less traveled 