loss – The road less traveled

Cheated or Chosen?

Last week I spent a few rare moments scrolling through social media. I was looking for inspiration and ended up seeing people on the beach, at work or outside enjoying nature. Over the years, I have spent less time on social media because I walk away from my phone feeling irritation or sadness.

Last week, I watched a You Tube video by Priscilla Shirer called Let God Restore Your Circumstances https://youtu.be/HHRllMZKmlc?si=KFQ7UlET40QDqI8h. In the video, she talked about a woman who was successful in her job but was led by the Holy Spirit to leave. It was a frustrating, scary time for her and she ended up babysitting for several families. She not only watched over the children, but she shared bible stories with them, brought over casseroles for the families, and formed close bonds with the children and families. After a time, she asked God why she left a successful job to babysit. She was understandably frustrated and confused about her purpose. God answered her prayers by showing her the smiles on the children’s faces when she rang the doorbell and the importance of the moms and dads spending time away – she knew that her purpose was so much deeper than babysitting.

Illustration of a path through spring, summer, autumn, and winter landscapes

I left my job at a Title Insurance Company to take care of my boys. As they were growing older they started having difficulty having their needs met by daycare. They were needing more help getting ready in the mornings which made it increasingly difficult for me to get it all done by 8:00 a.m. Things were a little tight financially but the stress level in our home dropped dramatically.

I stayed home with the boys for over ten years. It was a blessing for us: I was able to meet the boys’ increased needs without hiring any help and I was able to be there 100 percent for all of their surgeries, doctor appointments, and trips out of town for MDA events or visiting family. My husband worked long hours so it was a huge blessing to be able to stay home and take care of the housework and the boys so he could rest. He was diagnosed in 2005 with a genetic heart condition and I wanted to take the load off of him as much as I could.

The boys always enjoyed the River’s Edge Trail

It wasn’t until a few years after my oldest son, Christian, passed away that I began to feel like a prisoner in my own home. All around me my family and friends were traveling to fun destinations and sending me photos or posting them on social media. I have always been genuinely happy for them, but I also began to question my purpose and grew tired of feeling like I was standing still while life continued to move forward for everyone else.

So many of my classmates are grandparents now. I made peace knowing that I would most likely not be a grandmother but I still feel left out when I see people my age spending time with cute wee ones.

Over the years, I have learned to appreciate the small miracles in my daily life. As a result, it doesn’t take much to amuse me. When I went on a walk with my precious friend, she was amazed at how much I noticed as we walked along the river – various birds that I could identify by sight or sound, tiny streams of water bubbling out of the rock or a beautiful wildflower in the middle of a patch of weeds. I am truly thankful for this gift from God. Have I really been cheated?

I have always found great joy taking photos in the flower garden at Gibson Park.

When I went to the funeral home to see my son the day before the service, I sat in the room alone with him and I talked to him. I realized how much of a blessing it was to be able to take care of one of God’s special children. We are all His special children but there is something miraculous in His children who smile and inspire others despite their declining health. I thanked Christian for the honor of being his mother for 21 years. I realized that I was chosen to be a mother of 2 beautiful boys.

Through my experiences in raising 2 sons with Duchenne Muscular Dystrophy and the experiences I continue to have with my youngest son, Andrew, I want to write a book about their condition that can guide other parents through this difficult journey. I want to take the mistakes I made and the things I have learned to help other families living with this disease as well as any other challenge their children may be facing.

I don’t have to travel the world to know that God has a plan and purpose for my life. All I need to do is look into my son’s eyes and hear the love in his voice when he calls me “Best Mom”. Will the book I want to write take 5 years? 10? What else has God chosen me for? As I walk with Him each day in trust, surrender, prayer, and by reading His Word, He will show me each day what I need to do to remember that I have been chosen.

A New Journey

As I looked at the deep blue sky this morning, I was filled with awe. In the foreground, starlings started to line up on the power line. As I saw them I started to feel sadness. Every year, around Christian’s birthday, starlings gather and they fly around our house in huge masses.

Thousands of birds flock above colorful autumn trees and a park path — Thousands of birds swirl above vivid autumn trees under a dramatic cloudy sky.

I marvel at our ability as humans to feel so much at the same time. This is a blessing and something that I also wish I could turn off like a switch. Why do we have to experience the difficult emotions – grief, loneliness, anguish, fear, anxiety and so on? For years, I avoided feeling sadness and grief as I watched my sons’ health and independence deteriorate. Fear or some other unpleasant feeling would creep in and I would push it aside by keeping busy or looking at my phone.

There is a reason why God gave us the ability to feel. In order to be truly alive, we need to feel. Our emotions are a compass to guide us to what needs attention in our lives. I ignored this internal compass for decades until it began affecting my health – tense muscles, spasms, digestive problems, weakened immunity to name a few. Chronic stress accumulates in our bodies, spirts, and minds creating disruption to our well being.

As I was approaching rock bottom in 2023, my sister reminded me that our bodies are a temple of the Holy Spirit. “Do you not know that your bodies are temples of the Holy Spirit, Who is in you, whom you have received from God? You are not your own;you were bought at a price. Therefore honor God with your bodies.” (1 Corinthians 6:19-20) We honor God with our bodies by loving others and by loving ourselves enough to honor our emotions. We honor God by serving others out of our overflowing cup. God does not desire for us to be burned out and unfulfilled.

We were bought at a price – the blood of Jesus Christ. God loves us that much!!! Jesus wants us to live a full, abundant life. (John 10:10) By carrying around trauma, grief, and stuck emotions, I have been walking around in life with a backpack full of boulders. My body could only go on that way for so long.

This past spring, I enrolled in the Thriven Functional Medicine Program. I knew I needed help and guidance on the road to wellness. I always considered myself ahead of the curve with my health. I ate as clean as possible for over a decade and learned as much as I could about nutrition while ignoring my fading spirit and the emotions that were accumulating inside of me. I found out that my muscle mass is far lower than normal women my age, my immune system is weakened from chronic stress, and I have adrenal fatigue from…drumroll…chronic stress.

In order to begin on the road to wellness, I had to begin changing habits that have been a part of me for decades. For years, I did the same thing hoping that things would change. I have learned to admit that things in our lives do not change if we remain the same – functioning on too little sleep, people pleasing at the expense of my getting any rest, not getting regular exercise or sunlight, and being isolated. It was when I started making changes that I stopped falling asleep at the table during meals and I started losing weight.

Although Thriven is a seven month program, it’s only the beginning of a journey of healing in my mind, body, soul and spirit. At the root of illness for many of us are things like negative childhood experiences, trauma, loss, and abuse. By not facing these difficult situations, they fester in us like an infected wound. I have been learning what it means to look at my reflection in the mirror and respect the woman looking back, what self-care is and how we cannot give from an empty cup, that what we say and think about ourselves matters, and how important having non-negotiables in life is.

This month will be 12 years since Christian went to be with Jesus. The grieving I went through was only the tip of the iceberg. So much is buried beneath the surface of my made-up face and smile. Over the course of the next year or more, I will be facing the emotions I have buried for far too long and the back pack will slowly become lighter as the rocks will be taken out bit by bit.

This past weekend, Pastor Nate talked about their being “No Useless Tools” in the church family. He talked about the gifts and talents that God gives us and how we are to use them to serve and help others. Just because we are not gifted to play a guitar or sing doesn’t mean we have less meaning. I know a couple of the gifts that God has gifted me with and I look forward to blessing others with them. In order to do so I need to heal and know the truth – that we are worthy and loved more than we can think or imagine!

I am excited to share my journey with you. I posted regularly in this blog until about a year or so after Christian passed away. As I write this post today, I feel happy knowing that I am investing in one of the gifts God has given me. I look forward to what He has to show me. I will be stepping outside of my comfort zone but Jesus will be by my side every step of the way.

As the Leaves Fall

Dried up leaves litter the ground

Yellow, orange, and brown.

Sadness engulfs my heart.

The tree above stands strong and tall.

The leaves left on the branches resemble a stained glass window,

As the sun kisses them from above.

A memory comes to light, a dove

Held in my son’s lap

As we say goodbye to my sweet boy.

I watch the dove fly back home,

Going home like it says on the top

Of the casket decorated in blue

With seagulls flying away.

Oh how I wanted to stay

But, alas, leaving knowing there will be a day

When I hold you in my arms again.

Goodbye is Not the End

Eleven years ago today, my Christian went to be with the Lord. In the days and weeks leading up to today I have experienced sadness, anxiety, dread and other complicated emotions. At the same time, some amazing things have been taking place in my life.

Last weekend I was baptized and yesterday, I made a commitment to New City Church. I have joined a small bible study group and made new friends! I have witnessed leaves floating through the sky and gently rocking back and forth before they land softly on the ground, fall reflections off of the Missouri River, smiles from people I have never met, comfort from friends and the supernatural comfort of Jesus Christ.

Christian at the ocean off of the Florida coast.

Yesterday, I watched a video by Cain called The Commission https://youtu.be/APATH3ea-D0?si=wblR-jf6Lob4hjfx and it filled my heart with joy as tears rolled down my face. There are clips of The Chosen in this video and seeing the smile on Jesus’ face and everything He did for us filled my heart with joy. The lines of this song are so comforting and gives me a renewed purpose in the face of loss. “Goodbye is not the end of the journey, the end of the road. My Spirit is with you wherever you go.” “Go tell the world about me, I was dead and now I live.” This song reminds me that Christian is with Jesus and I will see him again.

Tears roll down my face after watching this video again. The smile on Jesus’ face and when he embraces those he loves just fills my heart with joy and hope that I will be in His arms one day. He was waiting for Christian with open arms and I know he is looking down from heaven and smiling as I begin my journey of surrender, service and fellowship. I love you son.

Holding Two Things at Once

A few months ago, my therapist talked to me about holding two emotions at the same time. I have used this bit of wisdom many times and really began to apply it as the season changed.

My son, Christian, was born on October 12, 1993. He went to be with the Lord on October 27, 2014. As the leaves began to turn and show their brilliance in the sunlight against the backdrop of a deeper, blue sky, I felt two emotions at once. I felt joy as I witnessed God’s amazing creation and the miracle of changing seasons while feeling an ache in my heart. Memories flashed across the canvas of my mind – our last outing with Christian at Gibson Park with the golden leaves and cooler temperatures. I see his hand dangling over the side of his chair, holding a piece of bread for a goose to nibble on. I remember him not wanting me to leave his side and not understanding why he all of a sudden didn’t want me out of his sight.

On his birthday, I vividly remember the purple, yellow and orange leaves scattered all over the front lawn as I took photos of him by his birthday sign. I remember so much of what he said and did during his last few days on this planet.

In my other hand, I hold the remembrance that Christian is with Jesus. He is whole, his body no longer contracted and muscles no longer wasting away. He can breathe fully, he can run with his friends who also passed away from Duchenne Muscular Dystrophy, and he is experiencing God in a way none of us will be able to until we go home.

How can my heart ache and be so full of joy at the same time? By knowing that God never leaves us and He cares about our grief, difficulties, anxieties and pain. I feel the grief down to my bones but yet I have hope. “Why are you in despair, O my soul? Why have you become restless and disquieted within me? Hope in God and wait expectantly for Him, for I shall yet praise Him.” (Psalm 42:11)

With God’s strength, we can hold two things at once – sorrow and joy, despair and peace, anger and relief, anxiety and hope. We need to give ourselves some grace to feel, slow down and look around at the miracles in our daily lives, miracles that are present even when our heart aches.

I Hope there are Art Classes in Heaven

Today my oldest son, Christian, would have turned 31. He passed away almost 2 weeks after his 21st birthday. We are going to the cemetery to clean the headstone and set some gifts out for him. I am also going to take a pottery class, which starts tonight, in his memory.

Even though he had physical limitations, Christian enjoyed making homemade greeting cards, drawing, and working with all sorts of media in art class. When he was in high school, his art teacher nominated him for an award in honor of a Zach Culliton who also overcame his disability to create a beautiful painting of a fish. Christian’s name remains listed to this day.

Christian took a lot of time and effort in making the picture which earned him the award. It was a very exciting evening and so many of our friends and family showed up to celebrate. I even met Zach’s mother and she was very kind. Zach passed away not too long before I met her. I hope to see her again.

Christian was always focused on his abilities instead of his limitations. He made numerous Star Wars lego models, enjoyed doing puzzles, and put his best effort into everything he did. On one particular project when he was in high school, he had to draw a creature made from three different real animals or insects. He then did a ceramic rendering of it. I have it sitting on the table today to remind me of his beautiful art and to give me strength to step outside of my comfort zone for 6 weeks on Saturdays for a couple of hours. I really hope I enjoy it and that pottery will be one of my gifts.

Like many of the hand made greeting cards Christian made for me over the years, I want to make some beautiful pottery for him. I want to picture him smiling down from Heaven. My heart is heavy and I would rather have Christian here to bake his favorite chocolate cake and order him pizza for dinner. I imagine he is doing something far better than anything this earth could ever provide. Happy Birthday my dear son. I know you are having the best time building unlimited lego models and making beautiful pottery because in Heaven, you are not sick. I love you and miss you with all of my heart and soul.

img_0385-1 — This was drawn by my dad shortly after Christian passed away.

You are never alone! My next post, when I am ready, will be the most difficult, real post I have written.

50 Years

When most of us turn 50, we are not suprised to see grey hairs sprouting out, have more trouble getting up off of the floor, or be added to the AARP mailing list (I was not impressed with this one). What I was not expecting was losing my father. He passed away on November 16th after a lengthy illness and my heart will never be the same.

Dad had so many talents with hunting being one of his favorites.

During the weeks that followed, my husband was a huge source of support. One day when the grief was especially painful, Dave reminded me that as hard as it was to lose him, I had 50 years with him. This changed my perspective dramatically.

For 50 years, I had the most wonderful father I could ask for, a father that always took care of me and my sisters and molded us into what we are today. Some of the most wonderful qualities that I see in my sisters and myself are from him. I have so many wonderful memories that far outweigh the troubling times. Memories of camping, fishing, hunting, archery tournaments, watching Clint Eastwood westerns, goofing off around the house, going on vacation to Arizona and California and driving to many places throughout Montana.

There is so much I want to share but that would make this into a novel-sized blog post. Over the past few months, some memories have been more vivid than others. One memory is when my husband and I got married in 1992. My parents and my youngest sister drove up to Rapid City. At the ceremony, Dad looked so handsome in his Army uniform. As we were getting ready to walk down the aisle, I couldn’t move. I looked down and saw that he was standing on my dress! We both had a good laugh before Dad proceeded to walk me down the aisle to give me away to my future husband.

Another memory is from years before when I was a little girl. I decided one day that I was going to help with the laundry. I threw random clothes into the washer and a good portion of them were Dad’s. I let the water run in, threw in some detergent and grabbed the bleach, which I proceeded to pour directly into the wash. When Mom noticed what I was doing, it was too late. Dad’s jeans and some of his favorite button up shirts were covered with white spots. Needless to say, he was pretty angry! Strangely, I do not remember being punished, but seeing the disappointment on Dad’s face when he saw his clothes was punishment enough.

Dad hung out with me and my sons at the Lewistown fair years ago.

When Dad came to our house to visit during the later years, my husband nicknamed him “Hurricane John”. He would bring his things in and randomly set them all over the house as he walked in. Dad was always an early riser and he made no exceptions when he was away from home. He would wake up not too long after me (I inherited the same quality of getting up early) and he would talk like it was the middle of the day. We would sit at the table with our bibles and talk before I started getting my boys up. I am so blessed to have had those morning chats with Dad.

Dad, Christian and Drew at Lewistown Pioneer Days

After I developed a chronic health condition in 2017, I was unable to travel the 109 miles to see my parents. A few months before Dad passed away, I was able to make the drive! I was able to visit with Dad for a few hours that trip and I was also able to make another trip less than a month later. I bent down and hugged him before I left that last time and it was the first time he didn’t get up from his chair to hug me. After he passed away, I had brief feelings of anger at not being able to see him as much while I was unable to drive down. I quickly replaced those feeling with gratefulness. The Lord’s timing is perfect and he healed me enough to be able to see him before he left us.

These memories, along with countless others, will give me comfort when I feel the loss in my aching heart. Those of us who are blessed to have known Dad and loved him will never stop noticing the hole in the world that symbolizes his passing, but the memories, oh the sweet memories, will make us smile.

What Faith Can Do

This past week I listened to some great Christian music. The song that has been in my head is What Faith Can Do by Kutlass. This song started playing on my Pandora feed just when I needed to hear it. I was feeling some pain and loneliness as I thought about Christian and I was doubting my strength to do all God had given me to do that day.

Official music video

We all come to places in our lives when we fall on our faces, face health issues or financial uncertainty, or we lose loved ones and face unspeakable heartache. This song is about rising from the ashes to find beauty, never giving up, and not being afraid to take that first step to make a new beginning. God is always by our side and He hears our prayers, even the silent prayer from the heart.

Our valleys may seem deep and unending but the sun will eventually shine. God gives us strength to keep going and because of this we are much stronger than we know. He helps us get through difficulties to get to the side of victory.

Faith gave me courage to get out of bed every morning of the first year after our son passed away. I barely had the strength to pray, but I still did even if it was a simple “God, help me!” Faith gave me the strength to continue caring for my family even though I thought the weight of grief would crush me. Faith helps us see the silver lining during a health challenge and gives us never ending hope. Faith can move the mountains in our lives if we trust God completely.

I hope you enjoy the video. I enjoy almost all of their music and this song will always have a special place in my heart.

Double Rainbow

My grandmother, Joan Juanita Peterson, was laid to rest last Saturday. When we walked into the funeral home, one of the first things I noticed was her casket – pine green with gold pine trees along the edges. The first thing that came to mind was, “that matches her.”

Once we were all seated and the pastor started the services, the first of 3 songs started playing that grandma had picked out months before – all classical pieces. As I sat next to my dad with tears streaming down my face, I remembered the cassette tape she gave me when I was younger. It was by Mantovani. At the time, I was listening to Duran Duran and Bon Jovi but I remember enjoying and appreciating the cassette in private. I wish I would have kept it. The pastor shared great stories and memories of grandma and my heart ached for her three sons as well as my sister. Sherry took care of grandma in her later years, mending fences and roofs, painting, and replacing floors. She always bought grandma cotton candy at the fair. She also took care of my grandma in her final days until the end.

The graveside services were beautiful – warm weather, blue skies with soft clouds drifting by, and cows quietly grazing in the distance. I commented that it was a beautiful place to be laid to rest. The funeral director agreed, saying he also enjoyed going up to the cemetery for moments of peace at the end of the day.

At the end of the services I gently patted grandma’s casket and told her I loved her. There is a beautiful crab tree in bloom right over grandma and grandpa’s grave and it was full of pink flowers. I plucked one of the blooms and set it on her casket before I walked away to join my husband and son.

Everyone was hungry at the luncheon and I was humbled by the church and everything they did to help my family. They provided a huge table of food and a kind woman plated up my mother’s food so she could keep both of her hands on her walker. My two-year old nephew, who has also been diagnosed with Duchenne Muscular Dystrophy, ran around the church basement in his little suit with a mischievous grin on his face. Despite the sadness in my dad’s heart, this little fella did not fail to make Dad smile.

That evening a storm rolled in. When the rain started to fall a double rainbow formed. It stretched from the edge of the Judith Mountains to the front of the house. Over the edge of the mountains, lightning started to strike. The Judith’s took on an otherworldy, orange color and they lightly glowed in the setting sun. The closing of the day we said goodbye to grandma could not have been more beautiful.

The next day, my son said “Mom, the lightning was there along with the rainbows because great grandma was sassy.” Well said son, I thought. I cannot think of a better closing to the great novel of my grandma’s full life. You have inspired me to live more, love more and fear less; to be bold and be myself; and to refuse to take a backseat in life. Rest in peace grandma – you were a warrior and an artist who painted the most vivid picture of life.