inspiration – The road less traveled

Unimaginable Love

In my therapy session yesterday, we talked about self-worth. My therapist said that when a baby is born, he or she has self-worth. We are all born with it. When the baby poops, she is not concerned about the smell and the mess. When he is hungry at 3 a.m., he is not concerned about waking up his parents.

As we all know, we go through our childhood and adulthood experiencing things that question and undermine our worth. For some of us, it can be traumatic – abuse, alcoholism in the home or neglect. For others it can be bullying at school or an adult figure who says something hurtful. Most of us are unaware of the strongholds and bondage that starts to form in our hearts and minds as we face situations over and over that undermine our feelings of worthiness.

For myself, there was not any love or validation in the home as I grew up. I do not harbor feelings of resentment towards my parents or grandparents because they were not able to give out what they did not have. They did the best they could with what they had at the time. I love them and am thankful that they made sure I had clothes, plenty to eat and for the things we did together as a family – camping, fishing, watching movies etc.

In school, being dark-skinned and looking a little different than the other kids, I was made fun of into my high school years. Kids made slanted eyes at me and chanted hurtful songs, excluded me, and were mean to me. In high school, my coach made a comment about me being a joke. This only made me work harder and become more successful in the sports I was involved in. I developed a rebellious streak and drank alcohol, violated curfew, and destroyed property, to name a few of the things I did to relieve the anxiety I was feeling.

I carried this into my adulthood and it manifested into a deep sense of insecurity. I cared way too much about what people thought and I became a professional people pleaser. I went to bars and partied to be accepted and I worked entirely too hard at home and at work. My worth became tied to receiving approval from others and in tangible accomplishments.

I recently joined New City Church and as I have surrendered my life to Jesus, doors have been opening left and right. I now enjoy fellowship with other women and am making friends. I am part of a church body full of the most loving, genuine people I have ever met along with leaders who truly care about the congregation! I am humbled to the point of tears for these blessings being poured out.

Even with all of these blessings, in church of all places, the enemy has been lying to me. He has been telling me I don’t belong and there is something wrong with me. He told me that if they knew the things I have done and the thoughts that go through my head they would reject me. The enemy is very patient (I learned from Joyce Meyer) and he starts to plant seeds in us at a very young age. These seeds eventually become chains of bondage, also known as strongholds.

In a conversation with my best friend yesterday, she pointed out to me that my low feelings of worthiness have become a stronghold in my life. When we have these areas of bondage in our lives, it gives the devil access to our soul. It’s only when we break free and learn the truth that we can kick him out and send him packing.

I started studying scriptures on our God-given worth. I read Isaiah 43:4. This scripture went deep into my core and I broke down in tears: “Since you are precious and honored in my sight, and because I love you, I will give people in exchange for you, nations in exchange for you life.” Something came loose in my soul and my heart opened to God’s love like never before. A song by Cory Asbury called Reckless Love https://youtu.be/Sc6SSHuZvQE?si=3Onwe7b5XnqFeBF5 came to my mind and I was truly humbled.

From Genesis to Revelation, God’s love is written all over His Word. By sending His Son to die on the cross so we can have relationship with Him is the ultimate expression of God’s Love:

John 3:16 NIV
For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.

When we open our hearts to His love and accept Jesus Christ as our Lord and Savior, our life will be transformed. His love heals us, brings joy and miracles into our lives and opens doors we never imagined would open. We see our worth in Him and not in what man says about us. We become who God created us to be and begin living out a love walk that becomes an example to others and gives them hope. Revealing God’s love to others becomes our mission and discipleship. Chains are broken and we become free!

The Truth

I haven’t posted in quite some time for a few reasons. A big one is…I wasn’t ready to share my testimony – the darkness I endured in the spring of 2023 that almost ended my life. Another reason is not prioritizing myself – letting my needs and gifts sit on the back burner of my daily life for decades.

A few days ago, I shared my story on Facebook. Here it is…

In one of my weakest, most vulnerable moments, I am ready to share what I have been going through over the last few years. I have a load of work ahead of me and Drew is waiting for me to get him going. The truth is, I am not okay. I have come a long way by the grace of God but in 2023, I almost lost everything.

I did everything I could to keep my family healthy for years, pouring my energy into keeping my sons’ disease from progressing and my husband’s heart from becoming weaker. I thought I had control of it all until Christian passed away. Even after he passed, I still pushed and pushed – going back to work, becoming a people pleaser and pushing down the emotions and trauma I have experienced over the last decades.

One morning in March of 2023, I broke. My nervous system couldn’t take it anymore. I took a downward spiral and I was in fight or flight for almost 2 months. This eventually led to a failed suicide attempt. This is where I bare my soul. The paramedics rushed me to the hospital and God saved me.

I hit rock bottom and it was solid because God was there. He has raised me up and opened doors that I never imagined would open. He has brought loving, supportive friends into my life, I have been learning things I would have never learned if my life hadn’t fallen apart and I am truly blessed.

I have been in therapy, working through the trauma that has been in my body for years, leading to chronic illness. We have been uncovering old wounds and pain that I haven’t felt since after Christian passed. This pain has been showing up and at times, bringing me to my knees.

This is going to be my testimony. I have compassion for those who have lost all hope and think suicide is the only answer. I have compassion for those who suffer from mental illness. I have compassion for anyone who is suffering. Please know that you can call or text 988. Call a friend or your therapist. Call 911 if you have to.

A woman was on the 9th Street bridge yesterday and a police officer was trying to help her to step back. I felt so much heartache when Dave told me he witnessed this as he was driving in his mail truck.

You are NEVER alone. God loves you and always has and always will.

I wanted to share my most painful, vulnerable story in the hopes that it will help someone. You don’t have to do it alone. Join a church, call a friend, get some counseling, pray, call 988. You are loved my friends.

Okay, I admit that after I posted this I experienced what my therapist calls a vulnerability hangover – that time period after being vulnerable and before receiving a response. That gap of time when you wonder how others will receive what you have shared.

Today, I am at peace with sharing my story. I truly hope it helps at least one person – someone who is without hope and wanting to give up.

I am ready to continue my journey with you. I truly miss writing and being creative. God blesses every one of us with talents and gifts that we can bless others with. My writing is one of them.

I am truly thankful for your time and I truly hope I can add some joy and hope to your days. Much love to you my dear friends!!!

I Hope there are Art Classes in Heaven

Today my oldest son, Christian, would have turned 31. He passed away almost 2 weeks after his 21st birthday. We are going to the cemetery to clean the headstone and set some gifts out for him. I am also going to take a pottery class, which starts tonight, in his memory.

Even though he had physical limitations, Christian enjoyed making homemade greeting cards, drawing, and working with all sorts of media in art class. When he was in high school, his art teacher nominated him for an award in honor of a Zach Culliton who also overcame his disability to create a beautiful painting of a fish. Christian’s name remains listed to this day.

Christian took a lot of time and effort in making the picture which earned him the award. It was a very exciting evening and so many of our friends and family showed up to celebrate. I even met Zach’s mother and she was very kind. Zach passed away not too long before I met her. I hope to see her again.

Christian was always focused on his abilities instead of his limitations. He made numerous Star Wars lego models, enjoyed doing puzzles, and put his best effort into everything he did. On one particular project when he was in high school, he had to draw a creature made from three different real animals or insects. He then did a ceramic rendering of it. I have it sitting on the table today to remind me of his beautiful art and to give me strength to step outside of my comfort zone for 6 weeks on Saturdays for a couple of hours. I really hope I enjoy it and that pottery will be one of my gifts.

Like many of the hand made greeting cards Christian made for me over the years, I want to make some beautiful pottery for him. I want to picture him smiling down from Heaven. My heart is heavy and I would rather have Christian here to bake his favorite chocolate cake and order him pizza for dinner. I imagine he is doing something far better than anything this earth could ever provide. Happy Birthday my dear son. I know you are having the best time building unlimited lego models and making beautiful pottery because in Heaven, you are not sick. I love you and miss you with all of my heart and soul.

img_0385-1 — This was drawn by my dad shortly after Christian passed away.

My Comeback

I would like to start this post by thanking everyone who hung in there while I was on a nearly 5 year hiatus. I am so happy to be able to start posting again, even if I have to take baby steps. God bless you all and thank you so much!

In May of 2017, I developed a neurological condition called Spasmodic Torticollis, also known as Cervical Dystonia. After trying unsuccessfully to ease the spasms and pulling with Botox, my condition worsened and I became very sick. This condition took a wrecking ball to every area of my life. I was no longer able to use my computer, read, write, apply makeup or do anything that required my head to be still. Even sitting became nearly impossible, as well as being able to relax and lie still.

Thanks to the good Lord, I came across information about the Spasmodic Torticollis Recovery Clinic in New Mexico. I started a remote program of massage, stretches, weight exercises, dietary guidelines, and attitude work over four years ago today. Like many things that we set out to do, my recovery has taken much longer than I thought and been far more difficult than anything I have every done.

Photo by u0410u043du043du0430 u0420u044bu0436u043au043eu0432u0430 on Pexels.com

During the first two years of doing the program, I thought for sure it would only take two years at the most to recover. Boy, was I in for a surprise. It took until recently for me to understand why God is taking so much longer than I thought to help me win this battle of battles. God didn’t just want to heal me physically. God wants me to be whole. He wants to heal my spirit, soul, heart, and mind. I tried many things during the first three years of my journey, like trying to make things happen in my own timing. All that did was prolong the process and even put me on an 18 month long detour.

I look forward to sharing with you the things I have learned. Things such as patience, perseverence, trusting in God’s timing and ways, overcoming fear and others. I would have never learned so many of the things I did if I would not have developed Torticollis

I am excited to report that I am about 95 percent recovered! Once I reach full recovery, I will develop a maintenance routine and continue most of what I currently do; however, on a much smaller, more manageable scale. Next will be stepping back into my life, which I am currently working on in small, baby steps. I am hoping to be able to make more consistent blog posts in the near future, but until then, I will do what I can each day and each week.

Am I the same person I was before I lost my health? I think that anyone who has also had to deal with a chronic illness would say, I am definately not the same, but better. Thank you so much for your time and I look forward to beginning my life again!

Respect for the Graves

Recently, I saw a story on the news about Andrew Lumish, a man who has spent the last 5 years cleaning headstones of U.S. Veterans in Tampa, Florida. His story touched a place in my heart because our oldest son is buried at Highland Cemetery. We have a family plot with a beautiful headstone so it gives me comfort to know that we will all be together out there one day.

My husband stopped by to visit our boy last week and noticed that the newly occupied plot behind ours was in disarray. They did not have a headstone yet, just a temporary marker along with some flowers and other sentimental items. We also had a temporary marker on ours for months as headstones are very costly. Most of the items, along with the marker, were laying down flat like the caretakers just ran over them with a mower. Dave walked over and fixed it so the family wouldn’t find it in such a state. I cannot imagine how I would feel if I went to the cemetery to visit our boy only to find that someone destroyed everything.

There were some young men doing groundskeeping while Dave was there. He said that they were talking very loudly to each other over the headstones and swearing a lot. This made me very sad. I go to the cemetery for peace and comfort and obviously this was not the day to go. I only hope that they respect the light saber, Star Wars figurines, and Darth Vader sign that we have at Christian’s grave.

As a teenager, I thought it was cool to go to the cemetery at midnight with my friends so we could tell stories and scare each other. I never disrespected any of the headstones but I also didn’t think about what a cemetery really is – a place where we can go to feel comfort, grieve, or even talk to those we have lost. I admit that I talked to Christian a lot more during the year after he passed away. Now when I go, I tell him how much I love and miss him and what we have been up to. I also spend time in silence. There are many magpies, western meadowlarks, robins and other birds who keep me company too. I don’t like the sight of bird droppings on the headstone but I like to think that they are watching over my boy.

Luckily, Highland Cemetery locks the gates at night. It is in the most beautiful area where the sky is big and the hills are rolling all the way to the horizon. I only hope that people will follow the example of Andrew Lumish and my husband and respect the graves of those who have passed on before us.

Could Have Been Me

Today’s song of the day is Could Have Been Me by The Struts. When I listened to the lyrics, I wanted to jump up and shout the lyrics along with the song.

Don’t wanna live as an untold story
Rather go out in a blaze of glory
I can’t hear you, I don’t fear you
I’ll live now cause the bad die last
Dodging bullets with your broken past
I can’t hear you, I don’t fear you now

Wrapped in your regret
What a waste of blood and sweat
Oh oh oh

I wanna taste love and pain
Wanna feel pride and shame
I don’t wanna take my time
Don’t wanna waste one line
I wanna live better days
Never look back and say
Could have been me
It could have been me
Yeah

Don’t wanna live as an unsung melody
I’d rather listen to the silence telling me
I can’t hear you, I won’t fear you
Don’t wanna wake up on Monday morning
The thought of work’s getting my skin crawling
I can’t fear you, I don’t hear you now

We all have songs that speak to our hearts. This particular song has since the first time I heard it. I think that three of the worst phrases along with “I can’t” are phrases that include the words coulda, woulda and shoulda. I use these words far more than I ought to and I want to say them less. If I live to be an old woman, I want to look back and know that I lived the best days I could in service and love. I hope to be able to look back and know that I changed the world in some way, even by encouraging and uplifting others.

We all have a song in our hearts and many of us are afraid to live out the melodies that God places in us. Fear can only keep us from living with purpose and without regret if we allow it to. Our pasts cannot keep us from having an excellent finish. When we refuse to allow fear and mistakes of our past to keep us from pursuing our dreams and showing up each and every day as our best selves, then we will not have to say “It could have been me.”

Beautiful Hands

My grandmother of 92 years is in hospice care. I drove over to see her last week and was taken aback by how frail she looked. As I sat next to her and talked to her, I kept looking at her hands. I thought of everything her hands accomplished during her life – raising three boys; taking care of a home; breeding and raising beagles; growing, picking, and canning massive amounts of vegetables every year; shooting and processing deer every year; raising and caring for rabbits; boarding dogs; creating art and building things; and living a full life. Her hands became still on her blanket as she slept, and I watched her hands raising up and down to match her breathing as I thought of everything they accomplished during her life.

July 19, 1980 — Some of my fondest memories are being in grandma’s backyard or in her garden.

Grandma only said what needed to be said and she said it with truth and boldness. I honestly cannot remember her ever making small talk. The funniest thing I remember hearing her say to date was about a woman sitting in the waiting room with her as she waited for the eye doctor: “She talked and talked for 30 minutes and didn’t say a thing.” Grandma listened and I know this because she always had a remedy or an idea for just about anything. When Dave had to go into the hospital for a stomach ulcer, her advice was to have him eat some lamb. When I wrote to her about our finches and the eggs that were being laid, she gave me tips on caring for a female that was having a hard time passing the eggs. I told grandma once how much I enjoyed hearing chickadees and she told me that she always knew when a deer was around because the chickadees would start chirping. I am thankful for every moment I have had with her and I will always try to follow her example in many areas of my life.

Equally amazing is my sister and our good friend, both of whom are caring for my grandma. The sacrifices they are making, the dedication, and the love they are pouring out for her truly humbles me beyond words.

We are not here on this earth just to exist, waiting for Friday every week and dreading Mondays. We are here to love, create, serve, worship, lift others up, and bless one another. One of the greatest gifts God gives us is the opportunity to care for others – whether it is hands on caregiving, offering a smile to a stranger or encouragement to a co-worker, donating our time or resources to people in need or simply being who God created us to be with no fear holding us back – only holy boldness and beautiful hands.

Staying Healthy as a Caregiver

As parents, we all know the value of taking care of ourselves. As a parent of a special needs child it is even more important. The physical, emotional, and mental demands can easily cause burnout if we neglect ourselves. I have learned a hard lesson with this over the last year.

For over 10 years, I was blessed with great health and strength as I cared for my two sons. Due to the progression of Duchenne Muscular Dystrophy, their needs only increased over the years. As their needs increased, my free time became more sparse so I had to make an effort to make the time count. I tried getting out once a week to my favorite coffee shops or the bookstore to enjoy my favorite novel, going for walks on the River’s Edge Trail, or reading the Sunday paper with a cup of freshly brewed coffee. I learned to cherish the small things and I still do.

I was diagnosed with Cervical Dystonia two months ago and for the first time ever, I was unable to care for my son. It was a very painful, humbling feeling and I am thankful my husband did most of his care. I have learned a lot going through this experience. I learned that it is far easier and not as expensive to prevent illness than to have to heal from it. Dystonia is genetic and it is possible that I may not have been able to prevent it, but like many illnesses it can be overcome. I wanted to share some simple, yet powerful steps we can take daily to stay healthy and have the energy to keep up with the sometimes overwhelming demands of caregiving.

For many years, I got up well before I needed to get the boys started for the day. Before Christian passed away, it took 3 1/2 to 4 hours to get them ready for the day. It was far easier to accomplish this on a daily basis when I knew that I at least did my personal care and took some time for myself already. This time can be spent doing the things we enjoy such as sitting quietly with a cup of coffee, reading the paper, in prayer, listening to music, or exercising. Every afternoon, I would lay the boys down for 30 minutes of rest time from their wheelchairs and take that time for a cup of tea and a good book. If I had extra time before preparing dinner I would use that time to write a letter to a loved one, send a greeting card, practice playing the piano or sit outside in the sun and watch the birds. It is amazing how energized I would feel after taking even 20 minutes to read a book I enjoy.

P1000241 — This is the last photo taken of Christian and me together.

After losing Christian, I lost my way. All of a sudden I had all of this time I never had before, and for a long time I felt guilty for trying to do something for myself. I have since realized that it is an honor to Christian’s memory to pursue my dreams because he never gave up on his. Christian read books up until the last 2 weeks of his life. He tilted back in his wheelchair, turned his head sideways on his headrest, and read on his iPhone. We all have gifts given to us from God and if we do not invest in them, we are throwing them away. The world ends up not being as wonderful as it could be with our gifts.

Christian won an award in high school for his excellent work overcoming his disability to create art.

Pursuing our dreams and goals also encourages our children to never give up despite their physical limitations and it also instills some normalcy into their daily lives. We have more energy to enjoy life and we become strong inside so we can better face the uncertainty associated with complications from the diagnosis.

Please share some ideas you may have about taking care of yourself and enjoying life to the fullest as we care for our loved ones.

Scars Strengthen Us

I read a story about four seeds in a book by Rev J. Martin called God’s Grace Is On The Way: Let go, embrace love. To sum it up, four seeds were taken up by the wind and dropped into a clearing in the jungle. Their dream was to grow to be beautiful trees, towering over the jungle. Three monkeys also lived in the clearing that liked to amuse themselves by throwing bananas at any plant that tried to grow. This made it very difficult for the seeds to take root. The seeds agreed that it would be better to wait for the group of monkeys to move on before they attempted to grow.

Weeks passed and one seed thought she should at least attempt it. When she tried to grow, the monkeys pelted her with bananas. She tried and tried, even after the other seeds asked her to stop trying. She didn’t give up but kept trying harder and harder as the monkeys continued to attack the plant.

Then, one day, the monkeys hit her with bananas but none made her stoop over. The little tree had taken so many blows that she was now full of hard knots and scars. Her slim trunk had gotten thicker and more resistant and could now withstand the impact of a banana. The monkeys were unable to uproot her. She grew until she became the most majestic tree in the jungle.

When we are dealt a bad hand in life or end up facing all sorts of difficulties, it is easy to give up on our dreams and goals. It could be bad news from the doctor, the loss of a loved one or financial difficulty that puts us in the middle of one of life’s storms. The storms can be so bad that it is difficult to see the other side of the lake and we wonder how we will ever make it across to the other side.

After recently being diagnosed with a chronic illness, I wasn’t sure if I could pursue my dreams any longer. I thought about the loss of my son, Christian, his brother, Andrew, who continues to fight his muscular dystrophy and my husband who lives with a heart condition. After being pelted with several bunches of bananas I set my dreams aside.

When we make it to the other side of life’s storms we become more resilient and strong. God can use us in amazing ways when we let Him give us the strength to keep putting one foot in front of the other when life gets hard. We can then be an inspiration to others who are dealing with their own difficulties.

We are all given gifts from God to make the world a better place. Some of us sing, play instruments, serve, sew, write or draw. Some of us are given the gift of inspiration. It is amazing what a kind word or a little encouragement can do for the spirit of another. No matter what difficulties come our way, we must never give up on the gifts that God graces us with. He knows how important our gifts are so He will give us the strength we need to make it through life’s storms.

365 New Beginnings

As I look out the window at the last day of 2017, I am thankful for the beauty and perfection on display. The snow is deep and smooth and it covers everything in a graceful blanket of white. The sky is a soft blue with whispy clouds and the birds gently eat at the feeders.

Like many, I am ready to say goodbye to this year and hello to 2018. I have never been one for resolutions or crash diets, but I do look forward to a new beginning. I am ready to leave the difficulties of this year behind and carry with me the lessons learned and the things God has blessed me with into 2018. God has blessed me with His strength and mercy every single morning that I opened my eyes. His Word has given me guidance through difficulties and challenges and has given me comfort on my most painful days. He has given me a loving, supportive husband and a wonderful son. I was a bride’s maid in my niece’s wedding this past summer, and my husband and I were able to take a long overdue vacation to sunny California. God has given me His comfort when I missed my son the most – if I would wake up dreaming that Christian is still with us or if I dreamt of losing him again. I have learned the importance of balance and rest of the mind, body and soul and how loving ourselves is the foundation to everything in our lives. By loving ourselves, we become more open to receiving the love of God. God pours His love into our hearts until they overflow so we can in turn love others.

What are my intentions for the new year?

To love even more…

To thank God for each new day and for the miracles He so graciously bestows upon us…

To invest in the gifts God has given me so I can bless others with them…

To serve others more…

To do more to brighten another’s day, whether it’s a smile, holding open the door, letting a vehicle go ahead of me in traffic or sending a greeting card or letter…

To keep my thoughts centered on the good things in life while letting go of the rest…

Each day is a new beginning, a chance to enjoy God’s mercy and love while experiencing His goodness which He promises us in His Word. I wish all of you a peaceful, blessed 2018 and that all your hopes and dreams come to life while love flourishes in your hearts and daily lives.