Unimaginable Love

In my therapy session yesterday, we talked about self-worth. My therapist said that when a baby is born, he or she has self-worth. We are all born with it. When the baby poops, she is not concerned about the smell and the mess. When he is hungry at 3 a.m., he is not concerned about waking up his parents.

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As we all know, we go through our childhood and adulthood experiencing things that question and undermine our worth. For some of us, it can be traumatic – abuse, alcoholism in the home or neglect. For others it can be bullying at school or an adult figure who says something hurtful. Most of us are unaware of the strongholds and bondage that starts to form in our hearts and minds as we face situations over and over that undermine our feelings of worthiness.

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For myself, there was not any love or validation in the home as I grew up. I do not harbor feelings of resentment towards my parents or grandparents because they were not able to give out what they did not have. They did the best they could with what they had at the time. I love them and am thankful that they made sure I had clothes, plenty to eat and for the things we did together as a family – camping, fishing, watching movies etc.

In school, being dark-skinned and looking a little different than the other kids, I was made fun of into my high school years. Kids made slanted eyes at me and chanted hurtful songs, excluded me, and were mean to me. In high school, my coach made a comment about me being a joke. This only made me work harder and become more successful in the sports I was involved in. I developed a rebellious streak and drank alcohol, violated curfew, and destroyed property, to name a few of the things I did to relieve the anxiety I was feeling.

I carried this into my adulthood and it manifested into a deep sense of insecurity. I cared way too much about what people thought and I became a professional people pleaser. I went to bars and partied to be accepted and I worked entirely too hard at home and at work. My worth became tied to receiving approval from others and in tangible accomplishments.

I recently joined New City Church and as I have surrendered my life to Jesus, doors have been opening left and right. I now enjoy fellowship with other women and am making friends. I am part of a church body full of the most loving, genuine people I have ever met along with leaders who truly care about the congregation! I am humbled to the point of tears for these blessings being poured out.

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Even with all of these blessings, in church of all places, the enemy has been lying to me. He has been telling me I don’t belong and there is something wrong with me. He told me that if they knew the things I have done and the thoughts that go through my head they would reject me. The enemy is very patient (I learned from Joyce Meyer) and he starts to plant seeds in us at a very young age. These seeds eventually become chains of bondage, also known as strongholds.

In a conversation with my best friend yesterday, she pointed out to me that my low feelings of worthiness have become a stronghold in my life. When we have these areas of bondage in our lives, it gives the devil access to our soul. It’s only when we break free and learn the truth that we can kick him out and send him packing.

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I started studying scriptures on our God-given worth. I read Isaiah 43:4. This scripture went deep into my core and I broke down in tears: “Since you are precious and honored in my sight, and because I love you, I will give people in exchange for you, nations in exchange for you life.” Something came loose in my soul and my heart opened to God’s love like never before. A song by Cory Asbury called Reckless Love https://youtu.be/Sc6SSHuZvQE?si=3Onwe7b5XnqFeBF5 came to my mind and I was truly humbled.

From Genesis to Revelation, God’s love is written all over His Word. By sending His Son to die on the cross so we can have relationship with Him is the ultimate expression of God’s Love:

John 3:16 NIV
For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.

When we open our hearts to His love and accept Jesus Christ as our Lord and Savior, our life will be transformed. His love heals us, brings joy and miracles into our lives and opens doors we never imagined would open. We see our worth in Him and not in what man says about us. We become who God created us to be and begin living out a love walk that becomes an example to others and gives them hope. Revealing God’s love to others becomes our mission and discipleship. Chains are broken and we become free!

Goodbye is Not the End

Eleven years ago today, my Christian went to be with the Lord. In the days and weeks leading up to today I have experienced sadness, anxiety, dread and other complicated emotions. At the same time, some amazing things have been taking place in my life.

Last weekend I was baptized and yesterday, I made a commitment to New City Church. I have joined a small bible study group and made new friends! I have witnessed leaves floating through the sky and gently rocking back and forth before they land softly on the ground, fall reflections off of the Missouri River, smiles from people I have never met, comfort from friends and the supernatural comfort of Jesus Christ.

Christian at the ocean off of the Florida coast.

Yesterday, I watched a video by Cain called The Commission https://youtu.be/APATH3ea-D0?si=wblR-jf6Lob4hjfx and it filled my heart with joy as tears rolled down my face. There are clips of The Chosen in this video and seeing the smile on Jesus’ face and everything He did for us filled my heart with joy. The lines of this song are so comforting and gives me a renewed purpose in the face of loss. “Goodbye is not the end of the journey, the end of the road. My Spirit is with you wherever you go.” “Go tell the world about me, I was dead and now I live.” This song reminds me that Christian is with Jesus and I will see him again.

April from Kalispell drew this photo

Tears roll down my face after watching this video again. The smile on Jesus’ face and when he embraces those he loves just fills my heart with joy and hope that I will be in His arms one day. He was waiting for Christian with open arms and I know he is looking down from heaven and smiling as I begin my journey of surrender, service and fellowship. I love you son.

Holding Two Things at Once

A few months ago, my therapist talked to me about holding two emotions at the same time. I have used this bit of wisdom many times and really began to apply it as the season changed.

My son, Christian, was born on October 12, 1993. He went to be with the Lord on October 27, 2014. As the leaves began to turn and show their brilliance in the sunlight against the backdrop of a deeper, blue sky, I felt two emotions at once. I felt joy as I witnessed God’s amazing creation and the miracle of changing seasons while feeling an ache in my heart. Memories flashed across the canvas of my mind – our last outing with Christian at Gibson Park with the golden leaves and cooler temperatures. I see his hand dangling over the side of his chair, holding a piece of bread for a goose to nibble on. I remember him not wanting me to leave his side and not understanding why he all of a sudden didn’t want me out of his sight.

On his birthday, I vividly remember the purple, yellow and orange leaves scattered all over the front lawn as I took photos of him by his birthday sign. I remember so much of what he said and did during his last few days on this planet.

In my other hand, I hold the remembrance that Christian is with Jesus. He is whole, his body no longer contracted and muscles no longer wasting away. He can breathe fully, he can run with his friends who also passed away from Duchenne Muscular Dystrophy, and he is experiencing God in a way none of us will be able to until we go home.

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How can my heart ache and be so full of joy at the same time? By knowing that God never leaves us and He cares about our grief, difficulties, anxieties and pain. I feel the grief down to my bones but yet I have hope. “Why are you in despair, O my soul? Why have you become restless and disquieted within me? Hope in God and wait expectantly for Him, for I shall yet praise Him.” (Psalm 42:11)

With God’s strength, we can hold two things at once – sorrow and joy, despair and peace, anger and relief, anxiety and hope. We need to give ourselves some grace to feel, slow down and look around at the miracles in our daily lives, miracles that are present even when our heart aches.

The Truth

I haven’t posted in quite some time for a few reasons. A big one is…I wasn’t ready to share my testimony – the darkness I endured in the spring of 2023 that almost ended my life. Another reason is not prioritizing myself – letting my needs and gifts sit on the back burner of my daily life for decades.

A few days ago, I shared my story on Facebook. Here it is…

In one of my weakest, most vulnerable moments, I am ready to share what I have been going through over the last few years. I have a load of work ahead of me and Drew is waiting for me to get him going. The truth is, I am not okay. I have come a long way by the grace of God but in 2023, I almost lost everything.

I did everything I could to keep my family healthy for years, pouring my energy into keeping my sons’ disease from progressing and my husband’s heart from becoming weaker. I thought I had control of it all until Christian passed away. Even after he passed, I still pushed and pushed – going back to work, becoming a people pleaser and pushing down the emotions and trauma I have experienced over the last decades.

One morning in March of 2023, I broke. My nervous system couldn’t take it anymore. I took a downward spiral and I was in fight or flight for almost 2 months. This eventually led to a failed suicide attempt. This is where I bare my soul. The paramedics rushed me to the hospital and God saved me.

I hit rock bottom and it was solid because God was there. He has raised me up and opened doors that I never imagined would open. He has brought loving, supportive friends into my life, I have been learning things I would have never learned if my life hadn’t fallen apart and I am truly blessed.

I have been in therapy, working through the trauma that has been in my body for years, leading to chronic illness. We have been uncovering old wounds and pain that I haven’t felt since after Christian passed. This pain has been showing up and at times, bringing me to my knees.

This is going to be my testimony. I have compassion for those who have lost all hope and think suicide is the only answer. I have compassion for those who suffer from mental illness. I have compassion for anyone who is suffering. Please know that you can call or text 988. Call a friend or your therapist. Call 911 if you have to.

A woman was on the 9th Street bridge yesterday and a police officer was trying to help her to step back. I felt so much heartache when Dave told me he witnessed this as he was driving in his mail truck.

You are NEVER alone. God loves you and always has and always will.

I wanted to share my most painful, vulnerable story in the hopes that it will help someone. You don’t have to do it alone. Join a church, call a friend, get some counseling, pray, call 988. You are loved my friends.

The Truth sets us free

Okay, I admit that after I posted this I experienced what my therapist calls a vulnerability hangover – that time period after being vulnerable and before receiving a response. That gap of time when you wonder how others will receive what you have shared.

What did I do?

Today, I am at peace with sharing my story. I truly hope it helps at least one person – someone who is without hope and wanting to give up.

There is always hope my friends

I am ready to continue my journey with you. I truly miss writing and being creative. God blesses every one of us with talents and gifts that we can bless others with. My writing is one of them.

I am truly thankful for your time and I truly hope I can add some joy and hope to your days. Much love to you my dear friends!!!

I Hope there are Art Classes in Heaven

Today my oldest son, Christian, would have turned 31. He passed away almost 2 weeks after his 21st birthday. We are going to the cemetery to clean the headstone and set some gifts out for him. I am also going to take a pottery class, which starts tonight, in his memory.

Even though he had physical limitations, Christian enjoyed making homemade greeting cards, drawing, and working with all sorts of media in art class. When he was in high school, his art teacher nominated him for an award in honor of a Zach Culliton who also overcame his disability to create a beautiful painting of a fish. Christian’s name remains listed to this day.

Christian took a lot of time and effort in making the picture which earned him the award. It was a very exciting evening and so many of our friends and family showed up to celebrate. I even met Zach’s mother and she was very kind. Zach passed away not too long before I met her. I hope to see her again.

Christian was always focused on his abilities instead of his limitations. He made numerous Star Wars lego models, enjoyed doing puzzles, and put his best effort into everything he did. On one particular project when he was in high school, he had to draw a creature made from three different real animals or insects. He then did a ceramic rendering of it. I have it sitting on the table today to remind me of his beautiful art and to give me strength to step outside of my comfort zone for 6 weeks on Saturdays for a couple of hours. I really hope I enjoy it and that pottery will be one of my gifts.

Like many of the hand made greeting cards Christian made for me over the years, I want to make some beautiful pottery for him. I want to picture him smiling down from Heaven. My heart is heavy and I would rather have Christian here to bake his favorite chocolate cake and order him pizza for dinner. I imagine he is doing something far better than anything this earth could ever provide. Happy Birthday my dear son. I know you are having the best time building unlimited lego models and making beautiful pottery because in Heaven, you are not sick. I love you and miss you with all of my heart and soul.

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This was drawn by my dad shortly after Christian passed away.

The Light in the Darkness

Hitting the Rock Bottom is a painting by Svein Ove Hareide

My last post was in March of 2023 and I want to thank you for being here after such a long gap. On a cloudy day of the same month, my life took a sharp turn that I did not see coming. I started experiencing higher levels of anxiety like never before and I had no idea what was happening. I just thought I was really stressed. I really knew something was wrong when I had my first panic attack.

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I had a general feeling of anxiousness the next day and feeling lost that would barely let up and the moments of clarity became few and far between as time went on. The panic attacks increased and so did the fear and feelings of being unsafe. I started seeing a therapist and he did not explain to me why my brain was overreacting to things that slightly bothered me before. He said it was all normal. The panic attacks increased and I became stuck in a pattern of fight or flight that lasted for almost 2 months. I became exhausted in every way and eventually, I was barely able to care for my adult disabled son.

I blamed myself for what had happened to me. I did not know that anxiety disorders stem from years of stress, childhood environments, trauma, repressed grief and so much more. I thought I was letting my family down because my husband had to take time off of work and the stress on them was not healthy.

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Things continued to worsen and I eventally ended up at rock bottom. It was the most difficult, painful time of my life. It was at the bottom that I realized that God had been with me the whole time, even when I did not feel worthy of His love. Jesus was there at the bottom with His arms open wide and He saved my life.

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It took some time and hard lessons for me to decide to take the medication they were highly encouraging me to try. For most of my life, I have always looked down on medication for anxiety and depression. I would think things like, why doesn’t so and so get more exercise or eat better. For some people, that’s all they need alongside a good therapist who can teach the patient how to control panic attacks and learn cognitive behavior therapy skills. On the other side of the spectrum are people like me who need medication just to function, gain back strength, and also be able to do the work to heal.

Once the medication helped to get my system out of fight or flight, I started gaining strength little by little and eventually I was able to care for my son again. I prayed throughout the day, started practicing deep breathing techniques and meditation and I continue to practice them daily. I was blessed to find an awesome therapist and prescribing Nurse Practitioner and I started making strides. I have learned that anxiety is not my enemy, but a way for my body to let me know that I need to slow down and empty out that stress bucket that was getting too full. I also started following The Anxiety Guy on You Tube. He posts videos and has two podcasts. He had several anxiety disorders for years and has since healed. He has written four books that I know of that are super helpful and his programs are affordable and have helped thousands to heal from their anxiety disorders instead of just coping. I will always have my tool box but I am learning not to let anxiety run my life. It is a long, difficult journey, but I am learning so many things that I would have never learned on a different path.

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God brought several miracles into our lives during my first year of healing and continues to daily. We found an angel of a caregiver to come in and help me get Drew up in the morning and she has become a close friend. Drew received an inheritance from his great grandfather and bought a new van! It wasn’t long before we started taking short little road trips and this past July, we went to Salt Lake City! When I was at rock bottom, I would have never imagined I would be where I am today.

Like any illness or condition a person recovers from, I have good days and bad days – we all do. Each day I am learning something new. My life is so different than it was before I broke and it is so much better in many ways. I have learned to slow down, trust God for EVERYTHING, love myself and the little me that went through some tough times growing up, and forgive myself while practicing self compassion.

If you have ever seen Brené Brown on You Tube or read any of her books, you would be familiar with her famous talk on vulnerability and her talk based on a quote by Teddy Roosevelt called The Man in the Arena https://youtu.be/fE6fa7OpVu0?si=QlcIlLlBQcbpLUzv. By publishing this post, I will be experiencing vulnerability like never before but that’s okay. Like Brené Brown said in her speech on being in the arena with her face marred and covered in blood and sweat, there are seats reserved for those who love and care about her and even for those who criticize her. Unless those who are critical of her are willing to join her in the arena, where life has kicked her up and down, she is not interested in what they have to say.

When I was in the darkness, unsure of my future and what was happening to me, I knew that once I healed I wanted to help others. I want to give my testimony to offer hope and to let others know that they too can heal and God can bring us out of the deepest, darkest places because He loves us unconditionally and cares for us deeply. September is National Suicide Awareness Month and it is so important for everyone to know that they matter, they are loved, and there is help. Like 911 connects us to emergency services, 988 connects you to counselors and people who can help you if you are in a crisis or contemplating suicide. There is help – people love you and care about you. I love you and am so thankful for your time. God bless you and there will be more posts to come. I am not on a timetable but I will continue to work on future posts as I continue this healing journey.

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My Comeback

I would like to start this post by thanking everyone who hung in there while I was on a nearly 5 year hiatus. I am so happy to be able to start posting again, even if I have to take baby steps. God bless you all and thank you so much!

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In May of 2017, I developed a neurological condition called Spasmodic Torticollis, also known as Cervical Dystonia. After trying unsuccessfully to ease the spasms and pulling with Botox, my condition worsened and I became very sick. This condition took a wrecking ball to every area of my life. I was no longer able to use my computer, read, write, apply makeup or do anything that required my head to be still. Even sitting became nearly impossible, as well as being able to relax and lie still.

Thanks to the good Lord, I came across information about the Spasmodic Torticollis Recovery Clinic in New Mexico. I started a remote program of massage, stretches, weight exercises, dietary guidelines, and attitude work over four years ago today. Like many things that we set out to do, my recovery has taken much longer than I thought and been far more difficult than anything I have every done.

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During the first two years of doing the program, I thought for sure it would only take two years at the most to recover. Boy, was I in for a surprise. It took until recently for me to understand why God is taking so much longer than I thought to help me win this battle of battles. God didn’t just want to heal me physically. God wants me to be whole. He wants to heal my spirit, soul, heart, and mind. I tried many things during the first three years of my journey, like trying to make things happen in my own timing. All that did was prolong the process and even put me on an 18 month long detour.

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I look forward to sharing with you the things I have learned. Things such as patience, perseverence, trusting in God’s timing and ways, overcoming fear and others. I would have never learned so many of the things I did if I would not have developed Torticollis

I am excited to report that I am about 95 percent recovered! Once I reach full recovery, I will develop a maintenance routine and continue most of what I currently do; however, on a much smaller, more manageable scale. Next will be stepping back into my life, which I am currently working on in small, baby steps. I am hoping to be able to make more consistent blog posts in the near future, but until then, I will do what I can each day and each week.

Am I the same person I was before I lost my health? I think that anyone who has also had to deal with a chronic illness would say, I am definately not the same, but better. Thank you so much for your time and I look forward to beginning my life again!

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Land Ho!

Three years ago I was diagnosed with a chronic health condition called Torticollis, also known as Cervical Dystonia. It took about nine months to even receive that diagnosis. I tried Botox injections hoping they would give me relief, but they ended up making me worse. I left my job, and many parts of my life were left in pieces. The simplest of tasks, such as using a computer, eating, and applying makeup, along with the more difficult task of caring for my son, became increasingly difficult to do. By the following Fall, I was sick and had no answers.

It took me longer to find an answer because all I could see was my life in pieces.

As I was reading Diagnosis Dystonia, by Tom Seaman, I came across a chapter where he talked about the Spasmodic Torticollis Recovery Clinic in New Mexico. This program helped him to recover, as well as many others who stayed faithful to the program all the way through. I was very excited after visiting the website and decided to do the remote distance program.

Finally, I saw rays of hope on the horizon.

As of today, I have been working hard at the program for two and a half years and I can finally see land in the distance! This has been the most difficult battle I have ever faced, and yet I have grown closer to Jesus Christ and learned things I would have never learned without going through this. I have learned many lessons about patience, faith, perseverance, trusting God, and the importance of knowing God’s love. I have also experienced being at one of the lowest points in my life and in the darkest nights of the soul. This battle of battles will become my testimony.

Knowing that God loves us is one of the most important parts of healing.

Sometimes the home stretch is the most difficult and I am working harder than ever on my program to reclaim my life. Just writing in this blog is a huge step towards the finish line! I am so very thankful for all of you for sticking around even though I have not posted for years. My writing is a bit rusty, but I am keeping at it and I know it will be even better in the end.

I look forward to sharing what I have learned and what it means to trust God with everything. I also had to overcome the worst fear I have ever faced. The Lord has given me strength to do the program every day and take care of my adult disabled son. This has not left me with a lot of free time, but in order to achieve victory we have to pay a price for a while. Once I am on the other side of this storm, I will be stronger, healthier and wiser. I will be better able to serve others and be who God created me to be. Like Joyce Meyer said, “Let your test become your testimony.”

We go through difficulties and trials to come out at the other side ready to share our story and give hope to others.

What Faith Can Do

This past week I listened to some great Christian music.  The song that has been in my head is What Faith Can Do by Kutlass.  This song started playing on my Pandora feed just when I needed to hear it.  I was feeling some pain and loneliness as I thought about Christian and I was doubting my strength to do all God had given me to do that day.

Official music video

We all come to places in our lives when we fall on our faces, face health issues or financial uncertainty, or we lose loved ones and face unspeakable heartache.  This song is about rising from the ashes to find beauty, never giving up, and not being afraid to take that first step to make a new beginning.  God is always by our side and He hears our prayers, even the silent prayer from the heart.

Our valleys may seem deep and unending but the sun will eventually shine.  God gives us strength to keep going and because of this we are much stronger than we know.  He helps us get through difficulties to get to the side of victory.

Faith gave me courage to get out of bed every morning of the first year after our son passed away.  I barely had the strength to pray, but I still did even if it was a simple “God, help me!”  Faith gave me the strength to continue caring for my family even though I thought the weight of grief would crush me.  Faith helps us see the silver lining during a health challenge and gives us never ending hope.  Faith can move the mountains in our lives if we trust God completely.

I hope you enjoy the video.  I enjoy almost all of their music and this song will always have a special place in my heart.

God’s grace for the Race

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Yesterday, I completed my first Island Challenge.  The event took place in Lewistown at the Half Moon Ranch and it featured different events – a half-marathon, overnight bike ride and 8K/11K hikes.  I signed up for the 11K hike.  I am a natural introvert so engaging on such an adventure solo stirred up feelings of fear and doubt.  I had thoughts of backing out more than once.

I woke up early and made the hour-long drive so I could have plenty of time to check in.  I was not disappointed by the beauty of the ranch.  There were cows greeting passing cars on the dirt road leading to the ranch and the rising sun brought everything to life.  I arrived at the pavilion to the smell of bacon and pancakes.  I checked in, pinned on my number along with the memorial pin of my son.  The ranch is surrounded by mountains and wildlife so I enjoyed the views while I waited for the hike to begin.

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When it was time to gather around the starting line I made sure to listen to the directions, especially pertaining to the split between the two hikes.  The horn went off and I began my  journey.  We started on a hill and I slowly ended up in the back.  I told myself that all I want to do is finish, even if I am last.  I was looking forward to the solitude of being in the back.

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We went uphill for over a mile and my heart was racing.  My legs started to burn in places they usually don’t and the terrain became very rugged.  I had to watch where I was stepping so I wouldn’t fall or roll my ankle.  As we started to spread out more, I could hear the wind blowing through the tops of the pines.  Everything around me was beautiful and so full of life and color, even the rocks and foliage along the side of the road.  I made it to the first water station and was happy they had kleenex and fresh fruit.  The oatmeal I ate for breakfast wore off before I even started the hike.  We had a brief respite from walking uphill but another hill waited after the rest station.  I attacked it with vigor and pumped my arms to give me a boost.  Tendons I didn’t know existed were sore and I  began to feel the weakness caused by the muscular dystrophy.  I wasn’t about to let it stop me.

 

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I thought of Christian and how he and his brother were never able to hike because their bodies became too weak once they were old enough.  I thought of my mother and the pain she has endured from her legs giving out.  I also thought of a co-worker who is battling cancer.  I felt that second wind come along and I kept it up.  I walked alone for a good part of the hike except for the marathon runners that passed occasionally.  I came up on the 6K sign and realized I was over half way through.  The second water station came a short time later and they said I had one mile left.  I thought the nice man didn’t know what he was talking about.  How could I only have one mile left?  I pressed on further and approached a downhill slope that made me hesitate.  I pictured myself trying to run down it and tumbling down for eternity like Chris Farley in one of his movies.  I eased my way down and felt my quads burn like fire.  When I was closer to the bottom, I let gravity help me and ran a short way.  I slowed, went through a gate and I could hear cheering.  I thought that was odd because I still had a way to go.  The pavilion came into view and I knew something was off.  I felt like I had accomplished something great, but 11k in a little under 2 hours?  I crossed the finish line with a smile and a feeling of completion.  It didn’t dawn on me that I went the wrong way until I noticed hikers with the 11K blue race bibs on cross the line that were in front of me earlier.

I have to admit that I felt disappointed because I signed up for the longer hike.  I beat myself up a bit for making a mistake and missing that turn.  I was very tired and sore after completing the shorter hike so I thought that maybe it was for the best.  Next year I can try the longer hike.

I opened my devotional this afternoon and read about the grace of God.  Grace is the evidence of his love for us which is freely given.  It comes to us as talents, through other people or in ways totally unexpected and most needed whether we realize it or not.  God wants for us what is best and sometimes it seems unfair.  Although my hike ended up being 3K shorter than planned, perhaps He knew that I started off too big.  My legs ached like they haven’t in years and I really cannot imagine how they would feel had I completed the longer hike.

I cannot change the fact that my legs are not as strong as I would like but God has given me the ability to keep walking and hiking, just not marathon distances.  He has blessed me with a loving husband and a son who despite his prognosis, continues to do everything he can with what he has.  He also blessed me with a son who kept fighting until his last breath.

Christian was with me on my hike walking beside me and he knows I gave it my all.  For everything he lost and everything Andrew continues to fight for I will not give up, even if it means taking a path I didn’t expect to take.

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