health – The road less traveled

The Threshing Sledge

As I read today’s Our Daily Bread devotion, tears streamed down my face. The author wrote about a bear cub that was rescued and how it did not want to let go of the man who rescued him. I started to reflect on my own journey and how much I have needed Jesus for so much of my life. The more I study God’s Word and learn about Jesus, the more I want to surrender to Him.

In the first few verses of Psalm 55, David is pleading to God: “Listen to my prayer, O God, do not ignore my plea; hear me and answer me. My thoughts trouble me and I am distraught…My heart is in anguish within me; the terrors of death have fallen on me. Fear and trembling have beset me; horror has overwhelmed me. I said, “Oh, that I had the wings of a dove! I would fly away and be at rest.” (V. 1-2, 4-6)

After I experienced a nervous breakdown and developed General Anxiety Disorder, I experienced desperation as my body and mind broke down. The enemy used this as an opportunity to destroy me. My thoughts became dark, disturbing and very troubling. I began to experience panic episodes because they scared me and made me feel like I was losing my mind. I was desperate and pleaded with God. I became very fearful, my body trembled, my neck spasms increased and I could not sleep.

Shame from the darkness of my thoughts crept in and I could not read my Bible. I began to feel separate and forsaken by God for the first time in my life. I thought often of fleeing like a dove to find the rest I desperately needed. This eventually lead to a failed suicide attempt.

I didn’t know how much I needed God until He met me at rock bottom. In my darkest moment, when the people around me seemed so cruel and uncaring, God was there. No one really knows what it is like to suffer from extreme anxiety and panic disorder unless they have been there. I do not want anyone else to know the agony and loneliness associated with it.

Once I settled in back home and started the long process of healing, I relied heavily upon Jesus. I got down on my knees and prayed when the anxiety and depression began to feel overwhelming. “Evening, morning and noon I cry out in distress, and He hears my voice.” (v. 17)

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God heard me and answered me. He brought a caregiver into my life to help with Drew and she has become my best friend and mentor, along with her wonderful husband. The have led me on a faith walk that has catapulted me into places I thought I would never see. She has been alongside of me as I have been on the threshing floor. https://youtu.be/s6CxzZvkUtA?si=8rASA92G9zVK1fyU

I began to learn what it means to surrender my life to God and the Holy Spirit. “Cast your cares on the Lord and He will sustain you; He will never let the righteous be shaken.” (v. 22) As I have surrendered more, doors have been opening left and right. I have joined a small bible study group, been invited to coffee with new friends, received an outpouring of support and love during the most difficult moments and started serving at church. I have experienced the power of the Holy Spirit as I have given over the reigns of my life to Jesus.

This hasn’t been without pain. I have felt like I have been under the threshing sled, but it has refined me. The trauma and emotion that have been held down for most of my life has surfaced and I have been seeing a therapist to learn how to deal with them.

God knows how long I need to go through this. At the same time, I have felt release from fear that cannot be explained away by medication alone. As I have been taking anxiety medications, I have also had to make lifestyle changes and align my thinking and my life up with the Word of God. I know that God will deliver me, and eventually, I will no longer need them.

If you are suffering from anxiety, depression or suicidal thoughts, please reach out. It may feel like there is no hope but there is – His Name is Jesus. You can call 988, your counselor, a friend or go to your local emergency room. You are not crazy, you will not be put into a padded room. I had to stay at an inpatient unit twice and it was scary. I look back at it now and realize that it saved my life. You are loved more than you can imagine!!!

Your healing is ahead, your dreams are in front of you; they are just obscured by the noise in your head caused by trauma, stress and years of repressed emotions. It’s okay to take medication if you need to because it helps you do the work – praying, studying God’s Word, journaling, talking it out, learning how to process emotions and taking care of yourself. You matter!!! You are LOVED!!!

Light Shines Brighter in the Darkness

What would I say to the part of me that has been in the dark for so many years? What does she need and how did she end up there?

These are questions I am asking after writing in my journal this morning. My therapist and I have been using a method of therapy called Internal Family Systems during my healing journey.

We all have a little family in our hearts and/or minds. This includes our inner child, maybe a teenage version of ourselves, a fearful or insecure version, an angry version of us etc. I will not go into too much detail because I am not a therapist and I don’t want to put myself or you to sleep.

With the help of my therapist, I have been connecting with these parts of myself and finding out what they need. For example, our inner child needs to know she is safe and loved if she didn’t receive this growing up. This video is very moving and perfectly shows our relationship with our inner child and how she eventually can be freed https://youtu.be/V6ui161NyTg?si=oTDTIjRLHTjwJxdz.

A pond is so much more beautiful before the sand on the bottom is stirred up, making the water foggy. In the moment, it feels so much easier to leave everything in the dark – past trauma, mistakes, sins and things that stir up shame. The problem is that leaving them in the dark keeps us in bondage. We cannot be truly free if we don’t allow ourselves to be vulnerable. Jesus said in John 8:32: “Then you will know the truth, and the truth will set you free.” The energy it takes to haul around the baggage of our past sins, mistakes and trauma wears us down and keeps us from living life to the fullest. Jesus came so that we may have life and live it to the fullest (John 10:10).

By cleaning the dirt off of the windows so light can shine into the dark recesses of my soul, I am giving my body, mind, soul and spirit a chance to heal. Being vulnerable is never comfortable but without it we will never get out of the darkness. Jesus did not hang on the cross so we would live imprisoned by our sins, mistakes or shame. He loves us beyond measure, and wants to have a personal relationship with all of us. By letting the light into every dark corner of our lives we can experience the peace of Christ like never before.

The part of me that has been living in the dark for years upon years is afraid of the light but she is tired of being alone. She also wants to experience peace and joy. There is no lightswitch to turn on an overhead light and deal with it all at once – that isn’t realistic or healthy. Each day, another candle is lit, another window is cleaned and the chains are slowly breaking. Freedom is on the way.

The Truth

I haven’t posted in quite some time for a few reasons. A big one is…I wasn’t ready to share my testimony – the darkness I endured in the spring of 2023 that almost ended my life. Another reason is not prioritizing myself – letting my needs and gifts sit on the back burner of my daily life for decades.

A few days ago, I shared my story on Facebook. Here it is…

In one of my weakest, most vulnerable moments, I am ready to share what I have been going through over the last few years. I have a load of work ahead of me and Drew is waiting for me to get him going. The truth is, I am not okay. I have come a long way by the grace of God but in 2023, I almost lost everything.

I did everything I could to keep my family healthy for years, pouring my energy into keeping my sons’ disease from progressing and my husband’s heart from becoming weaker. I thought I had control of it all until Christian passed away. Even after he passed, I still pushed and pushed – going back to work, becoming a people pleaser and pushing down the emotions and trauma I have experienced over the last decades.

One morning in March of 2023, I broke. My nervous system couldn’t take it anymore. I took a downward spiral and I was in fight or flight for almost 2 months. This eventually led to a failed suicide attempt. This is where I bare my soul. The paramedics rushed me to the hospital and God saved me.

I hit rock bottom and it was solid because God was there. He has raised me up and opened doors that I never imagined would open. He has brought loving, supportive friends into my life, I have been learning things I would have never learned if my life hadn’t fallen apart and I am truly blessed.

I have been in therapy, working through the trauma that has been in my body for years, leading to chronic illness. We have been uncovering old wounds and pain that I haven’t felt since after Christian passed. This pain has been showing up and at times, bringing me to my knees.

This is going to be my testimony. I have compassion for those who have lost all hope and think suicide is the only answer. I have compassion for those who suffer from mental illness. I have compassion for anyone who is suffering. Please know that you can call or text 988. Call a friend or your therapist. Call 911 if you have to.

A woman was on the 9th Street bridge yesterday and a police officer was trying to help her to step back. I felt so much heartache when Dave told me he witnessed this as he was driving in his mail truck.

You are NEVER alone. God loves you and always has and always will.

I wanted to share my most painful, vulnerable story in the hopes that it will help someone. You don’t have to do it alone. Join a church, call a friend, get some counseling, pray, call 988. You are loved my friends.

Okay, I admit that after I posted this I experienced what my therapist calls a vulnerability hangover – that time period after being vulnerable and before receiving a response. That gap of time when you wonder how others will receive what you have shared.

Today, I am at peace with sharing my story. I truly hope it helps at least one person – someone who is without hope and wanting to give up.

I am ready to continue my journey with you. I truly miss writing and being creative. God blesses every one of us with talents and gifts that we can bless others with. My writing is one of them.

I am truly thankful for your time and I truly hope I can add some joy and hope to your days. Much love to you my dear friends!!!

The Light in the Darkness

*Hitting the Rock Bottom* is a painting by Svein Ove Hareide

My last post was in March of 2023 and I want to thank you for being here after such a long gap. On a cloudy day of the same month, my life took a sharp turn that I did not see coming. I started experiencing higher levels of anxiety like never before and I had no idea what was happening. I just thought I was really stressed. I really knew something was wrong when I had my first panic attack.

I had a general feeling of anxiousness the next day and feeling lost that would barely let up and the moments of clarity became few and far between as time went on. The panic attacks increased and so did the fear and feelings of being unsafe. I started seeing a therapist and he did not explain to me why my brain was overreacting to things that slightly bothered me before. He said it was all normal. The panic attacks increased and I became stuck in a pattern of fight or flight that lasted for almost 2 months. I became exhausted in every way and eventually, I was barely able to care for my adult disabled son.

I blamed myself for what had happened to me. I did not know that anxiety disorders stem from years of stress, childhood environments, trauma, repressed grief and so much more. I thought I was letting my family down because my husband had to take time off of work and the stress on them was not healthy.

Things continued to worsen and I eventally ended up at rock bottom. It was the most difficult, painful time of my life. It was at the bottom that I realized that God had been with me the whole time, even when I did not feel worthy of His love. Jesus was there at the bottom with His arms open wide and He saved my life.

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It took some time and hard lessons for me to decide to take the medication they were highly encouraging me to try. For most of my life, I have always looked down on medication for anxiety and depression. I would think things like, why doesn’t so and so get more exercise or eat better. For some people, that’s all they need alongside a good therapist who can teach the patient how to control panic attacks and learn cognitive behavior therapy skills. On the other side of the spectrum are people like me who need medication just to function, gain back strength, and also be able to do the work to heal.

Once the medication helped to get my system out of fight or flight, I started gaining strength little by little and eventually I was able to care for my son again. I prayed throughout the day, started practicing deep breathing techniques and meditation and I continue to practice them daily. I was blessed to find an awesome therapist and prescribing Nurse Practitioner and I started making strides. I have learned that anxiety is not my enemy, but a way for my body to let me know that I need to slow down and empty out that stress bucket that was getting too full. I also started following The Anxiety Guy on You Tube. He posts videos and has two podcasts. He had several anxiety disorders for years and has since healed. He has written four books that I know of that are super helpful and his programs are affordable and have helped thousands to heal from their anxiety disorders instead of just coping. I will always have my tool box but I am learning not to let anxiety run my life. It is a long, difficult journey, but I am learning so many things that I would have never learned on a different path.

God brought several miracles into our lives during my first year of healing and continues to daily. We found an angel of a caregiver to come in and help me get Drew up in the morning and she has become a close friend. Drew received an inheritance from his great grandfather and bought a new van! It wasn’t long before we started taking short little road trips and this past July, we went to Salt Lake City! When I was at rock bottom, I would have never imagined I would be where I am today.

Like any illness or condition a person recovers from, I have good days and bad days – we all do. Each day I am learning something new. My life is so different than it was before I broke and it is so much better in many ways. I have learned to slow down, trust God for EVERYTHING, love myself and the little me that went through some tough times growing up, and forgive myself while practicing self compassion.

If you have ever seen Brené Brown on You Tube or read any of her books, you would be familiar with her famous talk on vulnerability and her talk based on a quote by Teddy Roosevelt called The Man in the Arena https://youtu.be/fE6fa7OpVu0?si=QlcIlLlBQcbpLUzv. By publishing this post, I will be experiencing vulnerability like never before but that’s okay. Like Brené Brown said in her speech on being in the arena with her face marred and covered in blood and sweat, there are seats reserved for those who love and care about her and even for those who criticize her. Unless those who are critical of her are willing to join her in the arena, where life has kicked her up and down, she is not interested in what they have to say.

When I was in the darkness, unsure of my future and what was happening to me, I knew that once I healed I wanted to help others. I want to give my testimony to offer hope and to let others know that they too can heal and God can bring us out of the deepest, darkest places because He loves us unconditionally and cares for us deeply. September is National Suicide Awareness Month and it is so important for everyone to know that they matter, they are loved, and there is help. Like 911 connects us to emergency services, 988 connects you to counselors and people who can help you if you are in a crisis or contemplating suicide. There is help – people love you and care about you. I love you and am so thankful for your time. God bless you and there will be more posts to come. I am not on a timetable but I will continue to work on future posts as I continue this healing journey.

If you or someone you know is struggling with suicidal thoughts or are experiencing a mental health crisis, you can dial the 24/7 National Suicide Prevention hotline at 988 or go to SuicidePreventionLifeline.org.

My Comeback

I would like to start this post by thanking everyone who hung in there while I was on a nearly 5 year hiatus. I am so happy to be able to start posting again, even if I have to take baby steps. God bless you all and thank you so much!

In May of 2017, I developed a neurological condition called Spasmodic Torticollis, also known as Cervical Dystonia. After trying unsuccessfully to ease the spasms and pulling with Botox, my condition worsened and I became very sick. This condition took a wrecking ball to every area of my life. I was no longer able to use my computer, read, write, apply makeup or do anything that required my head to be still. Even sitting became nearly impossible, as well as being able to relax and lie still.

Thanks to the good Lord, I came across information about the Spasmodic Torticollis Recovery Clinic in New Mexico. I started a remote program of massage, stretches, weight exercises, dietary guidelines, and attitude work over four years ago today. Like many things that we set out to do, my recovery has taken much longer than I thought and been far more difficult than anything I have every done.

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During the first two years of doing the program, I thought for sure it would only take two years at the most to recover. Boy, was I in for a surprise. It took until recently for me to understand why God is taking so much longer than I thought to help me win this battle of battles. God didn’t just want to heal me physically. God wants me to be whole. He wants to heal my spirit, soul, heart, and mind. I tried many things during the first three years of my journey, like trying to make things happen in my own timing. All that did was prolong the process and even put me on an 18 month long detour.

I look forward to sharing with you the things I have learned. Things such as patience, perseverence, trusting in God’s timing and ways, overcoming fear and others. I would have never learned so many of the things I did if I would not have developed Torticollis

I am excited to report that I am about 95 percent recovered! Once I reach full recovery, I will develop a maintenance routine and continue most of what I currently do; however, on a much smaller, more manageable scale. Next will be stepping back into my life, which I am currently working on in small, baby steps. I am hoping to be able to make more consistent blog posts in the near future, but until then, I will do what I can each day and each week.

Am I the same person I was before I lost my health? I think that anyone who has also had to deal with a chronic illness would say, I am definately not the same, but better. Thank you so much for your time and I look forward to beginning my life again!

Land Ho!

Three years ago I was diagnosed with a chronic health condition called Torticollis, also known as Cervical Dystonia. It took about nine months to even receive that diagnosis. I tried Botox injections hoping they would give me relief, but they ended up making me worse. I left my job, and many parts of my life were left in pieces. The simplest of tasks, such as using a computer, eating, and applying makeup, along with the more difficult task of caring for my son, became increasingly difficult to do. By the following Fall, I was sick and had no answers.

It took me longer to find an answer because all I could see was my life in pieces.

As I was reading Diagnosis Dystonia, by Tom Seaman, I came across a chapter where he talked about the Spasmodic Torticollis Recovery Clinic in New Mexico. This program helped him to recover, as well as many others who stayed faithful to the program all the way through. I was very excited after visiting the website and decided to do the remote distance program.

Finally, I saw rays of hope on the horizon.

As of today, I have been working hard at the program for two and a half years and I can finally see land in the distance! This has been the most difficult battle I have ever faced, and yet I have grown closer to Jesus Christ and learned things I would have never learned without going through this. I have learned many lessons about patience, faith, perseverance, trusting God, and the importance of knowing God’s love. I have also experienced being at one of the lowest points in my life and in the darkest nights of the soul. This battle of battles will become my testimony.

Knowing that God loves us is one of the most important parts of healing.

Sometimes the home stretch is the most difficult and I am working harder than ever on my program to reclaim my life. Just writing in this blog is a huge step towards the finish line! I am so very thankful for all of you for sticking around even though I have not posted for years. My writing is a bit rusty, but I am keeping at it and I know it will be even better in the end.

I look forward to sharing what I have learned and what it means to trust God with everything. I also had to overcome the worst fear I have ever faced. The Lord has given me strength to do the program every day and take care of my adult disabled son. This has not left me with a lot of free time, but in order to achieve victory we have to pay a price for a while. Once I am on the other side of this storm, I will be stronger, healthier and wiser. I will be better able to serve others and be who God created me to be. Like Joyce Meyer said, “Let your test become your testimony.”

We go through difficulties and trials to come out at the other side ready to share our story and give hope to others.

Grief, Interrupted

The year after Christian passed away was extremely painful, but thanks to the strength and comfort of God, we made it through a day at a time. Dave’s job became extremely demanding in the following month after we lost our boy. He went with the flow for the next several months but by summer, working 14 hour days was not enough for the company, so he had to leave. The following September, Dave suggested I call the company that I worked at before leaving in 2005 to care for the boys’ increasing needs. I called them, dropped off my resume, and everything fell into place. I was terrified because I had been out of the work force for so long but I was also thrilled and very thankful for the opportunity to work for my family again.

About a week into my return to work came the first anniversary of Christian’s passing. Dave suggested that I go to work because the distraction might be good for me. I lasted about five minutes. Over the first few months I experienced a lot of nervousness each morning before I left for work and I started to experience slight anxiety when I performed certain job duties. I thought nothing of it because all jobs come with stress and anxiety. By summer, my anxiety increased and depression started to weigh me down. I started becoming emotional about things that normally would not make me so upset. I began to worry about the most ridiculous things, which fed my anxiety.

I took the second anniversary of Christian’s passing off along with what would be his 22nd birthday. I spent the greater part of that fall in a state of sadness as I remembered the days leading up to his passing. By Christmas my emotional problems worsened and the anxiety led to panic episodes the following spring. I took a few days off and started seeing a counselor. This slowly started to help and I really thought I was going to start feeling like myself again.

About two months later, I started to experience tightness in my neck. I associated it with ergonomics at work and tried carrying things differently, sitting up straighter, etc.. By fall, my neck worsened and the spasms set in. I kept working hard and doing everything I could to keep up with the workload. I also started acupuncture and massage therapy. My condition worsened to such an extent that I was having trouble eating, driving, and putting my makeup on. I did not receive a diagnosis and treatment until March of this year. I was confident that the treatment would help and things would go back to normal again.

The first set of injections only made my condition worse and I had to take a month long medical leave. Before I requested the medical leave I had a major panic episode and my good friend and neighbor stayed with me for a few hours. Before she dropped me off at home she looked at me and said that “my kettle blew.” She said that at the botton of the kettle was grief and stacked on top of that was my illness, worry for my son and husband, and the stress of my career. She said I needed to deal with the loss of my son by joining a grief group and learning about the stages of grief. It was at that point that I realized that I hadn’t been grieving since I returned to work. The fear, anxiety, and massive change I went through interruped the grieving process. I ended up leaving my job shortly after my medical leave.

It is easy to associate depression with loss – losing a child is devastating and I experienced days and moments of sadness that I thought would crush me. Ongoing depression that does not let up, however, is a sign that a person is not grieving in a healthy way. I had days that were harder – the pain felt more raw and I would cry, but I really thought I was moving forward and healing from the loss. There was so much going on in my life, so much change, that the grief and pain ended up buried underneath of it all. Unfortunately, it took an illness to open my eyes and see that I still have some grief work to do. Perhaps this blog post is a way of moving forward.

It may seem easier at the time to run away from the pain, bury it by keeping busy, or to tell everyone we are fine, but in the long run it can have devastating effects on our emotional, physical and spiritual health. I encourage you to reach out to friends, family, your pastor, grief counselors, or write it all down in a journal. Don’t bury your pain. Go through it so the pain doesn’t end up being wasted. Perhaps making it to the other side of difficulties makes us stronger so we can in turn help others who are hurting. Christian was my son, friend, and my teacher. I love him too much to waste the pain of losing him.

Staying Healthy as a Caregiver

As parents, we all know the value of taking care of ourselves. As a parent of a special needs child it is even more important. The physical, emotional, and mental demands can easily cause burnout if we neglect ourselves. I have learned a hard lesson with this over the last year.

For over 10 years, I was blessed with great health and strength as I cared for my two sons. Due to the progression of Duchenne Muscular Dystrophy, their needs only increased over the years. As their needs increased, my free time became more sparse so I had to make an effort to make the time count. I tried getting out once a week to my favorite coffee shops or the bookstore to enjoy my favorite novel, going for walks on the River’s Edge Trail, or reading the Sunday paper with a cup of freshly brewed coffee. I learned to cherish the small things and I still do.

I was diagnosed with Cervical Dystonia two months ago and for the first time ever, I was unable to care for my son. It was a very painful, humbling feeling and I am thankful my husband did most of his care. I have learned a lot going through this experience. I learned that it is far easier and not as expensive to prevent illness than to have to heal from it. Dystonia is genetic and it is possible that I may not have been able to prevent it, but like many illnesses it can be overcome. I wanted to share some simple, yet powerful steps we can take daily to stay healthy and have the energy to keep up with the sometimes overwhelming demands of caregiving.

For many years, I got up well before I needed to get the boys started for the day. Before Christian passed away, it took 3 1/2 to 4 hours to get them ready for the day. It was far easier to accomplish this on a daily basis when I knew that I at least did my personal care and took some time for myself already. This time can be spent doing the things we enjoy such as sitting quietly with a cup of coffee, reading the paper, in prayer, listening to music, or exercising. Every afternoon, I would lay the boys down for 30 minutes of rest time from their wheelchairs and take that time for a cup of tea and a good book. If I had extra time before preparing dinner I would use that time to write a letter to a loved one, send a greeting card, practice playing the piano or sit outside in the sun and watch the birds. It is amazing how energized I would feel after taking even 20 minutes to read a book I enjoy.

P1000241 — This is the last photo taken of Christian and me together.

After losing Christian, I lost my way. All of a sudden I had all of this time I never had before, and for a long time I felt guilty for trying to do something for myself. I have since realized that it is an honor to Christian’s memory to pursue my dreams because he never gave up on his. Christian read books up until the last 2 weeks of his life. He tilted back in his wheelchair, turned his head sideways on his headrest, and read on his iPhone. We all have gifts given to us from God and if we do not invest in them, we are throwing them away. The world ends up not being as wonderful as it could be with our gifts.

Christian won an award in high school for his excellent work overcoming his disability to create art.

Pursuing our dreams and goals also encourages our children to never give up despite their physical limitations and it also instills some normalcy into their daily lives. We have more energy to enjoy life and we become strong inside so we can better face the uncertainty associated with complications from the diagnosis.

Please share some ideas you may have about taking care of yourself and enjoying life to the fullest as we care for our loved ones.