Today my oldest son, Christian, would have turned 31. He passed away almost 2 weeks after his 21st birthday. We are going to the cemetery to clean the headstone and set some gifts out for him. I am also going to take a pottery class, which starts tonight, in his memory.
Even though he had physical limitations, Christian enjoyed making homemade greeting cards, drawing, and working with all sorts of media in art class. When he was in high school, his art teacher nominated him for an award in honor of a Zach Culliton who also overcame his disability to create a beautiful painting of a fish. Christian’s name remains listed to this day.
Christian took a lot of time and effort in making the picture which earned him the award. It was a very exciting evening and so many of our friends and family showed up to celebrate. I even met Zach’s mother and she was very kind. Zach passed away not too long before I met her. I hope to see her again.
Christian was always focused on his abilities instead of his limitations. He made numerous Star Wars lego models, enjoyed doing puzzles, and put his best effort into everything he did. On one particular project when he was in high school, he had to draw a creature made from three different real animals or insects. He then did a ceramic rendering of it. I have it sitting on the table today to remind me of his beautiful art and to give me strength to step outside of my comfort zone for 6 weeks on Saturdays for a couple of hours. I really hope I enjoy it and that pottery will be one of my gifts.
Like many of the hand made greeting cards Christian made for me over the years, I want to make some beautiful pottery for him. I want to picture him smiling down from Heaven. My heart is heavy and I would rather have Christian here to bake his favorite chocolate cake and order him pizza for dinner. I imagine he is doing something far better than anything this earth could ever provide. Happy Birthday my dear son. I know you are having the best time building unlimited lego models and making beautiful pottery because in Heaven, you are not sick. I love you and miss you with all of my heart and soul.
This was drawn by my dad shortly after Christian passed away.
Hitting the Rock Bottom is a painting by Svein Ove Hareide
My last post was in March of 2023 and I want to thank you for being here after such a long gap. On a cloudy day of the same month, my life took a sharp turn that I did not see coming. I started experiencing higher levels of anxiety like never before and I had no idea what was happening. I just thought I was really stressed. I really knew something was wrong when I had my first panic attack.
I had a general feeling of anxiousness the next day and feeling lost that would barely let up and the moments of clarity became few and far between as time went on. The panic attacks increased and so did the fear and feelings of being unsafe. I started seeing a therapist and he did not explain to me why my brain was overreacting to things that slightly bothered me before. He said it was all normal. The panic attacks increased and I became stuck in a pattern of fight or flight that lasted for almost 2 months. I became exhausted in every way and eventually, I was barely able to care for my adult disabled son.
I blamed myself for what had happened to me. I did not know that anxiety disorders stem from years of stress, childhood environments, trauma, repressed grief and so much more. I thought I was letting my family down because my husband had to take time off of work and the stress on them was not healthy.
Things continued to worsen and I eventally ended up at rock bottom. It was the most difficult, painful time of my life. It was at the bottom that I realized that God had been with me the whole time, even when I did not feel worthy of His love. Jesus was there at the bottom with His arms open wide and He saved my life.
It took some time and hard lessons for me to decide to take the medication they were highly encouraging me to try. For most of my life, I have always looked down on medication for anxiety and depression. I would think things like, why doesn’t so and so get more exercise or eat better. For some people, that’s all they need alongside a good therapist who can teach the patient how to control panic attacks and learn cognitive behavior therapy skills. On the other side of the spectrum are people like me who need medication just to function, gain back strength, and also be able to do the work to heal.
Once the medication helped to get my system out of fight or flight, I started gaining strength little by little and eventually I was able to care for my son again. I prayed throughout the day, started practicing deep breathing techniques and meditation and I continue to practice them daily. I was blessed to find an awesome therapist and prescribing Nurse Practitioner and I started making strides. I have learned that anxiety is not my enemy, but a way for my body to let me know that I need to slow down and empty out that stress bucket that was getting too full. I also started following The Anxiety Guy on You Tube. He posts videos and has two podcasts. He had several anxiety disorders for years and has since healed. He has written four books that I know of that are super helpful and his programs are affordable and have helped thousands to heal from their anxiety disorders instead of just coping. I will always have my tool box but I am learning not to let anxiety run my life. It is a long, difficult journey, but I am learning so many things that I would have never learned on a different path.
God brought several miracles into our lives during my first year of healing and continues to daily. We found an angel of a caregiver to come in and help me get Drew up in the morning and she has become a close friend. Drew received an inheritance from his great grandfather and bought a new van! It wasn’t long before we started taking short little road trips and this past July, we went to Salt Lake City! When I was at rock bottom, I would have never imagined I would be where I am today.
Like any illness or condition a person recovers from, I have good days and bad days – we all do. Each day I am learning something new. My life is so different than it was before I broke and it is so much better in many ways. I have learned to slow down, trust God for EVERYTHING, love myself and the little me that went through some tough times growing up, and forgive myself while practicing self compassion.
If you have ever seen Brené Brown on You Tube or read any of her books, you would be familiar with her famous talk on vulnerability and her talk based on a quote by Teddy Roosevelt called The Man in the Arenahttps://youtu.be/fE6fa7OpVu0?si=QlcIlLlBQcbpLUzv. By publishing this post, I will be experiencing vulnerability like never before but that’s okay. Like Brené Brown said in her speech on being in the arena with her face marred and covered in blood and sweat, there are seats reserved for those who love and care about her and even for those who criticize her. Unless those who are critical of her are willing to join her in the arena, where life has kicked her up and down, she is not interested in what they have to say.
When I was in the darkness, unsure of my future and what was happening to me, I knew that once I healed I wanted to help others. I want to give my testimony to offer hope and to let others know that they too can heal and God can bring us out of the deepest, darkest places because He loves us unconditionally and cares for us deeply. September is National Suicide Awareness Month and it is so important for everyone to know that they matter, they are loved, and there is help. Like 911 connects us to emergency services, 988 connects you to counselors and people who can help you if you are in a crisis or contemplating suicide. There is help – people love you and care about you. I love you and am so thankful for your time. God bless you and there will be more posts to come. I am not on a timetable but I will continue to work on future posts as I continue this healing journey.
If you or someone you know is struggling with suicidal thoughts or are experiencing a mental health crisis, you can dial the 24/7 National Suicide Prevention hotline at 988 or go to SuicidePreventionLifeline.org.
When most of us turn 50, we are not suprised to see grey hairs sprouting out, have more trouble getting up off of the floor, or be added to the AARP mailing list (I was not impressed with this one). What I was not expecting was losing my father. He passed away on November 16th after a lengthy illness and my heart will never be the same.
Dad had so many talents with hunting being one of his favorites.
During the weeks that followed, my husband was a huge source of support. One day when the grief was especially painful, Dave reminded me that as hard as it was to lose him, I had 50 years with him. This changed my perspective dramatically.
Dad and me when I was a little wee one
For 50 years, I had the most wonderful father I could ask for, a father that always took care of me and my sisters and molded us into what we are today. Some of the most wonderful qualities that I see in my sisters and myself are from him. I have so many wonderful memories that far outweigh the troubling times. Memories of camping, fishing, hunting, archery tournaments, watching Clint Eastwood westerns, goofing off around the house, going on vacation to Arizona and California and driving to many places throughout Montana.
Me, my sisters and Dad
There is so much I want to share but that would make this into a novel-sized blog post. Over the past few months, some memories have been more vivid than others. One memory is when my husband and I got married in 1992. My parents and my youngest sister drove up to Rapid City. At the ceremony, Dad looked so handsome in his Army uniform. As we were getting ready to walk down the aisle, I couldn’t move. I looked down and saw that he was standing on my dress! We both had a good laugh before Dad proceeded to walk me down the aisle to give me away to my future husband.
Another memory is from years before when I was a little girl. I decided one day that I was going to help with the laundry. I threw random clothes into the washer and a good portion of them were Dad’s. I let the water run in, threw in some detergent and grabbed the bleach, which I proceeded to pour directly into the wash. When Mom noticed what I was doing, it was too late. Dad’s jeans and some of his favorite button up shirts were covered with white spots. Needless to say, he was pretty angry! Strangely, I do not remember being punished, but seeing the disappointment on Dad’s face when he saw his clothes was punishment enough.
Dad hung out with me and my sons at the Lewistown fair years ago.
When Dad came to our house to visit during the later years, my husband nicknamed him “Hurricane John”. He would bring his things in and randomly set them all over the house as he walked in. Dad was always an early riser and he made no exceptions when he was away from home. He would wake up not too long after me (I inherited the same quality of getting up early) and he would talk like it was the middle of the day. We would sit at the table with our bibles and talk before I started getting my boys up. I am so blessed to have had those morning chats with Dad.
Dad, Christian and Drew at Lewistown Pioneer Days
After I developed a chronic health condition in 2017, I was unable to travel the 109 miles to see my parents. A few months before Dad passed away, I was able to make the drive! I was able to visit with Dad for a few hours that trip and I was also able to make another trip less than a month later. I bent down and hugged him before I left that last time and it was the first time he didn’t get up from his chair to hug me. After he passed away, I had brief feelings of anger at not being able to see him as much while I was unable to drive down. I quickly replaced those feeling with gratefulness. The Lord’s timing is perfect and he healed me enough to be able to see him before he left us.
These memories, along with countless others, will give me comfort when I feel the loss in my aching heart. Those of us who are blessed to have known Dad and loved him will never stop noticing the hole in the world that symbolizes his passing, but the memories, oh the sweet memories, will make us smile.
I would like to start this post by thanking everyone who hung in there while I was on a nearly 5 year hiatus. I am so happy to be able to start posting again, even if I have to take baby steps. God bless you all and thank you so much!
In May of 2017, I developed a neurological condition called Spasmodic Torticollis, also known as Cervical Dystonia. After trying unsuccessfully to ease the spasms and pulling with Botox, my condition worsened and I became very sick. This condition took a wrecking ball to every area of my life. I was no longer able to use my computer, read, write, apply makeup or do anything that required my head to be still. Even sitting became nearly impossible, as well as being able to relax and lie still.
Thanks to the good Lord, I came across information about the Spasmodic Torticollis Recovery Clinic in New Mexico. I started a remote program of massage, stretches, weight exercises, dietary guidelines, and attitude work over four years ago today. Like many things that we set out to do, my recovery has taken much longer than I thought and been far more difficult than anything I have every done.
Photo by u0410u043du043du0430 u0420u044bu0436u043au043eu0432u0430 on Pexels.com
During the first two years of doing the program, I thought for sure it would only take two years at the most to recover. Boy, was I in for a surprise. It took until recently for me to understand why God is taking so much longer than I thought to help me win this battle of battles. God didn’t just want to heal me physically. God wants me to be whole. He wants to heal my spirit, soul, heart, and mind. I tried many things during the first three years of my journey, like trying to make things happen in my own timing. All that did was prolong the process and even put me on an 18 month long detour.
I look forward to sharing with you the things I have learned. Things such as patience, perseverence, trusting in God’s timing and ways, overcoming fear and others. I would have never learned so many of the things I did if I would not have developed Torticollis
I am excited to report that I am about 95 percent recovered! Once I reach full recovery, I will develop a maintenance routine and continue most of what I currently do; however, on a much smaller, more manageable scale. Next will be stepping back into my life, which I am currently working on in small, baby steps. I am hoping to be able to make more consistent blog posts in the near future, but until then, I will do what I can each day and each week.
Am I the same person I was before I lost my health? I think that anyone who has also had to deal with a chronic illness would say, I am definately not the same, but better. Thank you so much for your time and I look forward to beginning my life again!
Three years ago I was diagnosed with a chronic health condition called Torticollis, also known as Cervical Dystonia. It took about nine months to even receive that diagnosis. I tried Botox injections hoping they would give me relief, but they ended up making me worse. I left my job, and many parts of my life were left in pieces. The simplest of tasks, such as using a computer, eating, and applying makeup, along with the more difficult task of caring for my son, became increasingly difficult to do. By the following Fall, I was sick and had no answers.
It took me longer to find an answer because all I could see was my life in pieces.
As I was reading Diagnosis Dystonia, by Tom Seaman, I came across a chapter where he talked about the Spasmodic Torticollis Recovery Clinic in New Mexico. This program helped him to recover, as well as many others who stayed faithful to the program all the way through. I was very excited after visiting the website and decided to do the remote distance program.
Finally, I saw rays of hope on the horizon.
As of today, I have been working hard at the program for two and a half years and I can finally see land in the distance! This has been the most difficult battle I have ever faced, and yet I have grown closer to Jesus Christ and learned things I would have never learned without going through this. I have learned many lessons about patience, faith, perseverance, trusting God, and the importance of knowing God’s love. I have also experienced being at one of the lowest points in my life and in the darkest nights of the soul. This battle of battles will become my testimony.
Knowing that God loves us is one of the most important parts of healing.
Sometimes the home stretch is the most difficult and I am working harder than ever on my program to reclaim my life. Just writing in this blog is a huge step towards the finish line! I am so very thankful for all of you for sticking around even though I have not posted for years. My writing is a bit rusty, but I am keeping at it and I know it will be even better in the end.
I look forward to sharing what I have learned and what it means to trust God with everything. I also had to overcome the worst fear I have ever faced. The Lord has given me strength to do the program every day and take care of my adult disabled son. This has not left me with a lot of free time, but in order to achieve victory we have to pay a price for a while. Once I am on the other side of this storm, I will be stronger, healthier and wiser. I will be better able to serve others and be who God created me to be. Like Joyce Meyer said, “Let your test become your testimony.”
We go through difficulties and trials to come out at the other side ready to share our story and give hope to others.
This past week I listened to some great Christian music. The song that has been in my head is What Faith Can Do by Kutlass. This song started playing on my Pandora feed just when I needed to hear it. I was feeling some pain and loneliness as I thought about Christian and I was doubting my strength to do all God had given me to do that day.
We all come to places in our lives when we fall on our faces, face health issues or financial uncertainty, or we lose loved ones and face unspeakable heartache. This song is about rising from the ashes to find beauty, never giving up, and not being afraid to take that first step to make a new beginning. God is always by our side and He hears our prayers, even the silent prayer from the heart.
Our valleys may seem deep and unending but the sun will eventually shine. God gives us strength to keep going and because of this we are much stronger than we know. He helps us get through difficulties to get to the side of victory.
Faith gave me courage to get out of bed every morning of the first year after our son passed away. I barely had the strength to pray, but I still did even if it was a simple “God, help me!” Faith gave me the strength to continue caring for my family even though I thought the weight of grief would crush me. Faith helps us see the silver lining during a health challenge and gives us never ending hope. Faith can move the mountains in our lives if we trust God completely.
I hope you enjoy the video. I enjoy almost all of their music and this song will always have a special place in my heart.
Recently, I saw a story on the news about Andrew Lumish, a man who has spent the last 5 years cleaning headstones of U.S. Veterans in Tampa, Florida. His story touched a place in my heart because our oldest son is buried at Highland Cemetery. We have a family plot with a beautiful headstone so it gives me comfort to know that we will all be together out there one day.
My husband stopped by to visit our boy last week and noticed that the newly occupied plot behind ours was in disarray. They did not have a headstone yet, just a temporary marker along with some flowers and other sentimental items. We also had a temporary marker on ours for months as headstones are very costly. Most of the items, along with the marker, were laying down flat like the caretakers just ran over them with a mower. Dave walked over and fixed it so the family wouldn’t find it in such a state. I cannot imagine how I would feel if I went to the cemetery to visit our boy only to find that someone destroyed everything.
There were some young men doing groundskeeping while Dave was there. He said that they were talking very loudly to each other over the headstones and swearing a lot. This made me very sad. I go to the cemetery for peace and comfort and obviously this was not the day to go. I only hope that they respect the light saber, Star Wars figurines, and Darth Vader sign that we have at Christian’s grave.
As a teenager, I thought it was cool to go to the cemetery at midnight with my friends so we could tell stories and scare each other. I never disrespected any of the headstones but I also didn’t think about what a cemetery really is – a place where we can go to feel comfort, grieve, or even talk to those we have lost. I admit that I talked to Christian a lot more during the year after he passed away. Now when I go, I tell him how much I love and miss him and what we have been up to. I also spend time in silence. There are many magpies, western meadowlarks, robins and other birds who keep me company too. I don’t like the sight of bird droppings on the headstone but I like to think that they are watching over my boy.
Luckily, Highland Cemetery locks the gates at night. It is in the most beautiful area where the sky is big and the hills are rolling all the way to the horizon. I only hope that people will follow the example of Andrew Lumish and my husband and respect the graves of those who have passed on before us.
Great Falls is a windy city. When the wind is not blowing, one is liable to tip over from not having that constant head wind holding them up straight. Last summer was one of the worst fire seasons in the state of Montana. During the span of two months, the wind barely blew. It was hot, smokey, and most of us had to stay indoors most of the summer. I have never missed wind as much as I did during the summer of 2017.
We do not live very far from an oil refinery. Most days it smells like sulfur, oil, and all kinds of offensive things. Thanks to the wind, the smell does not carry over to our neighborhood most days. The wastewater treatment plant is a little further than the refinery but on days when the wind doesn’t blow and they are cleaning up some extra nasty waste, the smell makes its way over. Eww.
Lipglossip
When I was young, I used to complain about the wind because it messed up my hair. Thank goodness for Aqua Net. I used loads of it. We went on a picnic the other day and with each bite of food I took, I about ate a mouthful of hair too. It’s easy to complain about wind but most of the time I think about what it does for us.
Wind is a clean source of power, it cleans the air and makes the sky look bluer, it helps ships to sail, gives birds a break as they fly in place, flies kites, allows us to paraglide and surf, makes leaves rustle on trees, and helps us to cool off after a hot, summer day.
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I don’t use Aqua Net anymore but I am also older and I accept that a perfect hair day is a rarity. I am thankful for tumbleweeds blowing across the prairie in the wind, hair in my face as we drive down the highway, and swaying trees so long as we do not blow away to Oz like Dorothy and Toto. Next time my hairstyle is ruined by the wind or I end up with dirt it my eye I will think about the positive side of wind.
