Life – Page 2 – The road less traveled

My Lenten Journey

As a child, I remember the purple banners hanging up in the church in the weeks before Easter and people giving up bad habits for Lent. I would watch Jesus of Nazareth every year without fully comprehending what was unfolding on the screen. I squirmed as Jesus was whipped and nailed to the cross. As I became older, I had a difficult time with the violence and stopped watching movies based on His crucifixion. Today, my devotionals have led me to the crucifixion in God’s Word and what it means in my life. Admittedly, I become emotional when I read of His grief leading up to His arrest, the flogging and how the soldiers cast lots over His garments. It took the loss of my oldest son to fully comprehend the impact of the crucifixion and resurrection of our Lord on our lives today.

Jesus died so we could live. He took the guilt and sin of the world upon His shoulders because He loved us deeply and so we can enjoy eternal life with Him after we die. Until recently, I didn’t fully know the power and significance of His resurrection because I have been stuck on the crucifixion – not only His but my own. I have focused on the negative, on my mistakes and my past. I have resisted healing from my loss out of fear of forgetting Christian – the sound of his voice, his strength, kindness and how he made me laugh.

lewistown-day-fair_1438 — Christian at the Lewistown Fair

I began my Lenten journey with a booklet with a dragonfly on the front. It stated Be Ye Transformed on the front. I have learned that Lent isn’t just a waiting period from Ash Wednesday to Easter. It is a period of metamorphosis – of letting go of negativity and false beliefs so we can receive the Truth and fully come to know the love of God.

“Just as Christ was raised from the dead by the glory of the Father, so we too might walk in newness of life.” (Romans 6:4)

When we went to the cemetery to visit our boy today, it was sunny and we could hear western meadowlarks in the distance. A chickadee, which happened to be one of Christian’s favorite birds, landed in the tree next to us and sang a bit. As the sun warmed my face, I thought of Christian in heaven, with his favorite animals by his side, sitting in a mountain meadow surrounded by mountains surpassing any of ours in beauty and size. I didn’t shed any tears until a woman drove up to visit a grave across from ours. The age of the young man buried there isn’t far off from Christians. I cried as I watched her approach the headstone and kneel in front of it. “I know” I thought as we drove away, leaving her some privacy.

One of my favorite scriptures is John 10:10, when Jesus said “I came that they may have life, and have it to the full.” What does it mean to have a full life? It means greeting each day with gratitude and ending our “I AM” with powerful, positive words. It means fully accepting and enjoying ourselves, opening our hearts to God’s abundance and never giving up.

New Roads Ahead

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As 2016 came to a close, I made a choice to let go of the past and keep my sights on what lies ahead. I decided to do my best to only look back if I needed to smile or laugh. I always love the prospect of a new beginning, a fresh start to the new year. I have never been one to make New Year’s resolutions; however, I believe in the power of intention and adopting new and empowering beliefs.

When we make a resolution for the new year or a new intention, what if we were to begin by believing that we are enough just as we are, that we are loved more than we could ever imagine or that we are worthy of the best things in life?

Rather than focus on the pain and difficulty of 2016, I want to take the lessons learned as well as the joyful memories. I have learned the importance of gratitude, acceptance and compassion. With each passing day without my son, I realize more and more how precious life is – a gift to be cherished and enjoyed.

The other morning, I came across the prayer of St. Francis of Assisi. I decided that the words of this prayer would mirror my New Year’s resolution.

francis-of-assisi_lr-2-900 This prayer is an antidote to depression because it helps us to look outside of ourselves and in doing so, we may realize that our problems are not as monumental as they seem. It also reminds us that by serving and loving others, we become God’s hands and feet.

Thank you for reading my blog in 2016. I hope to post more frequently and most of all I hope to bring a ray of sunshine to someone’s day. I hope you had a wonderful New Years and wish you a prosperous 2017!

A Journey in Vinyl

I grew up in the age of vinyl. My parents had 8 tracks and a player but I went straight for the vinyl. I had my own little record player in my room. I enjoyed listening to my Disney collection, Sesame Street Christmas, and 20 Power Hits albums. My favorite songs off of the 20 Power Hits were Knock Three Times by Tony Orlando and Green Eyed Lady by Sugarloaf. On my parent’s player downstairs, I listened to Creedence Clearwater Revival, Elton John and Wayne Newton. I developed a crush on Wayne, as I listened to him and stared at his album cover. This was before Bon Jovi came into the picture.

20091209111822-untitled-9091209 — 8-track-shack.com

I remember the first cassette I bought – Look What the Cat Dragged In by Poison. I was fascinated because the cassette was clear. My all time favorite cassette was Def Leppard’s Hysteria. That was the first album I ever bought the day it came out. I also bought it on vinyl and I still own it. By the time CD’s entered the picture, I didn’t own a record player and honestly didn’t think much about vinyl. They were never in the stores and the only time I ever saw them was at my parent’s house. The first time my boys saw my parent’s records, they came upstairs exclaiming “Look Mom! Giant CD’s!”

A few years ago, my husband bought me a Music Hall record player for Christmas. He also surprised me with a few new vinyls to start out with. I was ecstatic!

A few weeks ago, a friend of my husband revealed that he had a large collection of vinyl and he wouldn’t mind lending me a few at a time to listen to. He had worked in a record store when he was young and since vinyl could be bought for less than $5 during that time, he ended up with quite a collection. These past few weeks have been a musical journey through time.

I will never forget listening to David Bowie’s Young Americans. David Bowie’s voice filled every room in my house. Among the albums I have been blessed to hear so far are The Fox by Elton John, Dire Straits, Face Value by Phil Collins, Flat as a Pancake by Head East, Loggins and Messina, Dr. Hook, Foghat, Foreigner, and my favorite so far – Donald Fagen’s The Nightfly. He told me Donald Fagen was a huge part of Steely Dan but I didn’t recognize any of the songs. As soon as the needle dropped, I was almost out of my seat as I.G.Y. started playing. If you are scatching your head and wondering what song that is, I almost bet if you start playing it on You Tube or Spotify you’ll say “I have heard that song!” I loved that album so much that I bought a used copy of it from Amazon.

Nothing compares to the sound of vinyl. There is a rawness and a richness that I don’t hear when I play songs from my iTunes library. Sadly, new vinyl is expensive – some albums costing over $30, however it is more worth the cost when they come with a free digital download.

Even if vinyl is not available, it is well worth it to join other people on their musical journeys as they grew up. You may be surprised to hear a song you loved growing up!

Light at the end of the Tunnel

I went for a walk this morning on the River’s Edge Trail, which runs along the bank of the Missouri River. The leaves were glowing a brilliant yellow and several birds flew ahead of me along the way – a magpie, a robin and a chickadee. The way the sun hit the trees on top of the hill and how it caused the foilage at the side of the trail to glow took my breath away. I am almost overwhelmed at times with the beauty of God’s creation. Since losing my son in 2014, I see things with different eyes. I went on a walk with a friend who also lost a son, and we agreed that it’s almost like layers have been peeled away and everything we see is blindingly beautiful compared to how we saw it before.

There have been many days over the last year, however, when I have been engulfed in darkness. I have experienced the dark night of the soul and experienced pain so intense that I just couldn’t stand being me. During the first year after losing Christian, I did what one of my grief books recommended, which was to lean into the grief. This meant that I cried the tears I needed to cry and felt what I needed to feel. I leaned on God constantly, read His word more than once a day for a while, and prayed often. He has done a great healing in me that I will never forget.

The darkness set in during the second year. Taking care of my youngest son, Andrew, although difficult to do while processing the tragedy of losing Christian, gave me purpose and something to focus on. I still felt important and needed. When I returned to work after over 10 years, everything I had ever believed about myself was dramatically changed. All of a sudden my husband was taking care of Drew, cooking meals and cleaning the house – things I have done since we married in 1992. Suddenly I had no idea who I was.

Rather than turning to God in prayer and to His Word and reaching out to supportive friends, I turned inward and started defining myself by how the world viewed me and by what I did each day. I felt unimportant and lost. I stopped blogging because of the fear of what people would think if they knew I was in so much pain. I didn’t want to be a downer by writing about the darkness and sadness.

The truth is that without darkness, we are unable to learn what needs to be brought into the light and healed. The pain and difficulty we endure becomes life experience, and although we would rather aviod it, we can use it to help others. Sharing my broken heart can actually help someone else who is going through their own personal tragedy.

As much as I want to be done grieving, I am not. As Marianne Williamson states in Tears to Triumph, “it (grief) is a process – not an event- best served when we surrender to it fully. Grief allows us to process incrementally what might be too shocking to the system to have to process all at once.” Tears are nothing to be ashamed of, especially when they are for someone we cherished and loved so much who is not longer with us. They wash away layers from the heart and help us to see everything with new eyes. As I continue to cross this vast sea of grief, I will share the lessons learned and the things that God wants to show me in hopes that I can help others know that no matter how deep the sadness, there is a light at the end of the tunnel.

My Camino

A few months ago, my husband asked me to watch a movie with him called The Way starring Martin Sheen and directed by his son, Emilio Estevez. In the wake of the loss of his son, Thomas Avery decides to walk the Camino de Santiago, a 776 km pilgrimage across Spain also known as The Way of St. James. The images in the movie were stunning and breathtaking. After having lost my oldest son in 2014, I really connected to the movie. Each person takes a stone with them that symbolizes their burdens. Along their pilgrimage they are able to lay the stones in an area to symbolize leaving their burdens behind.

20120618-193820 — The burdens people release have much to do with their reasons for walking the Camino. It may be the loss of a loved one, the loss of a job or overcoming a physical challenge.

15602033624_4c610f8944_b — The images online and in the movie are numerous. I encourage you to follow a Camino page on Instagram or search online. I experience peace from many of the images.

The journey ends for most at the Praza Obradoiro Cathedral. The images of the Cathedral brought tears to our eyes.

botafumeiro-santiago-de-compostela1a — One of the most memorable parts of the movie was seeing the massive incense burners swaying to and fro across the Cathedral.

The journey takes at least a month and many walk all the way to the ocean. Some start further into France before reaching Spain. There are numerous documentaries and one we enjoyed is called Walking the Camino. This movie affirmed my decision to add this pilgrimage to my bucket list.

It may be years until I am physically able to complete this journey let alone getting the time off of work, but I decided to start my journey now. I am not able to actually fly to the beginning of the Camino at St. Jean Pied De Port, but I can walk daily to overcome the physical discomforts of muscular dystrophy, lessen the depression and anxiety of daily life and loss, and strengthen my mind and body for something great which I hope to achieve. Here are pictures of my Camino:

I walk to the courthouse at least twice a day and always encounter beauty, whether it’s a sparrow in the grass or patterns on the sidewalk. The flower garden in Gibson Park is full of color. The River’s Edge Trail by Rainbow Dam is so peaceful and is also my favorite place to walk.

My sister and I walked the M trail behind the University of Missoula (go Griz!) and she inspired and encouraged me to keep walking and improving. Thanks Sis! I will always be thankful that my husband introduced me to the Camino de Santiago and we both hope to make the journey together one day. Check out the movie on Netflix and see if you can walk away without being inspired. Much hugs and love to you all!

The rose or the thorns?

We celebrated Drew’s 21st birthday at the Allegra in the Wynn. Chris Myers was eating dinner there and he wished Drew a happy birthday!

Yesterday, Drew had his 6 month checkup with the heart and lung doctors. Drew has Duchenne Muscular Dystrophy, a life-threatening form of MD that attacks muscles all over the body, including vital muscles like the heart and muscles that help us breathe. When we took Drew to see the doctors about 7 months ago, his numbers went down, so naturally we were nervous and afraid. To our surprise, the doctor came in the room, smiled, and asked me what I am giving Drew because his heart strength went up significantly. It was a blessing and a relief.

10991632_10200368380288399_8235321352078788452_o — When the boys were young, they participated in Eaglemount, therapeutic recreation for disabled kids & adults. Christian wasn’t afraid of the horses.

Not too long after receiving the good news, I kept wanting to ask about Christian. Why did he have to suffer so much? Why was his heart so much weaker? WHAT DID I DO WRONG? WEREN’T YOU PAYING ATTENTION? Most of the time, as I have been reluctant to accept, we will never fully understand or even know exactly what happened until we see our loved ones again in heaven. I believe we will experience so much peace and joy in God’s presence that it will not matter. Even when things go well and life gives me roses, I still want to hold onto the thorns. What will happen if I stop being so sad? Will I forget his voice, his smile or his strong spirit?

Part of healing is being thankful for each day and living each day as I know Christian would want me to live. I have had my pity parties and it’s normal when we are grieving, but after a while they actually do more harm than good. Complaining and being negative keep us from being all God created us to be and all Christian would want me to be. There were so many things Christian was not able to do and he accepted it most of the time. So many things that are mundane or even grievous to the rest of us were all Christian ever wanted. He wanted to work, run track and do the same classwork as the rest of the students. He wrote letters until he could not tolerate sitting up at his computer anymore. He tried reading the bible from front to back until his pain started and he had to spend most of the day tilted back in his chair. He did everything he could until his last breath that chilly October morning, which feels like it was yesterday and like it was ages ago at the same time.

I will focus on the roses in life and not hold onto the thorns. I will honor my son’s life by thanking God for the new day when my alarm goes off. I will be thankful that I can work and that I have my health. I will be thankful for clouds as well as sunshine, Mondays as well as Fridays, unpleasant people and sweet people, sour and sweet. I will live.

Light Pierces the Darkness

It has been several weeks since my last post and since then, we have gone on vacation and survived the spring forward time change. The robins are back and the trees are blooming. I have put off writing again and again because admittedly, I have been depressed. Not just the “I’m having a bad day” kind of depression, but the kind that makes your bones ache or feels like a heavy weight is on your chest and you have to talk yourself into getting out of bed a lot more than usual. This is not easy for me to admit. I had the hardest time trying to pinpoint the cause or event that triggered this cloud that has been hanging over my head – is it grief, lack of exercise or fun, my diet? Although all of these things can contribute to depression, the antidote that makes a world of difference in finding the light again is contained in one word: GRATITUDE.

Years ago, I started a gratitude journal. I kept it on my nightstand and made myself write down 5 things I was thankful for from that day. Despite the prognosis of my sons’ disease, I was able to find the joy in life almost every day. As the surgeries increased and the care took longer and became harder, and as I had to watch my oldest son endure pain and loss that was completely unfair, I stopped writing in it. A few months after we lost Christian, I bought a new gratitude journal. I may write down something big like “I am thankful for receiving an unexpected refund in the mail today” or something small like “I am thankful for the chickadees singing outside of my window.” Anything big or small that we can find to be grateful for can lift us up. We literally have to lift up our heads and look around so we can notice the beauty of God’s creation, which in turn lifts up our hearts. A heart of gratitude sets the stage for God’s blessings and His favor. It also opens windows and doors for goodness to flow into our lives and invites joy into our hearts.

A Tune in my Heart

After work today, I met my husband and son for dinner at our favorite Mexican restaurant. I think we all have one of those. Our favorite restaurant serves authentic cuisine and warm corn chips. Afterward, they were off to play poker and I reluctantly headed home. Alone isn’t a bad thing, but coming home to a quiet, empty house is a painful reminder of the loss. Over Christian’s life, the most time he ever spent away from me was during MDA summer camp which lasted for a week. When you care for a child with special needs, you develop a deeper connection, especially when you physically care for them 24/7. When Christian passed away I felt like I was thrown into an alternate universe. After 16 months I have become used to the new normal, but I still have moments when the realization that Christian isn’t with us makes my world turn on it’s side for a bit. Over time the dizzying effect doesn’t last as long but it will never be easy, just bearable.

Almost every time I have found myself alone in the house missing my boy, I turn on the music. Christian had so much passion for music. He enjoyed 90’s rap like NAS, current rap like Wiz Khalifa and Kid Cudi, and classics such as the Rolling Stones and Paul McCartney. He talked me into buying several vinyls during the last year of his life. He encouraged me to buy the vinyl even though I had the CD because the quality would be worth it. Christian even talked me into buying music that he knew I enjoyed but he didn’t much care for either way. He grew to enjoy a lot of my favorite alternative bands like Interpol and Bare Hands.

They say that it changes a person when someone you love dies. That is an understatement. I felt hollowed out for the longest time and had to rediscover who I was. I was a caregiver for both boys for over 10 years. It took me weeks, even months, to stop setting out two sets of pills at mealtime. Not all of the changes have been negative. I would never have believed it if someone told me I would gain anything from losing someone who was as much a part of me as Christian was.

I took this photo at Crystal Lake last summer.

When I see a beautiful sunset, I see so much more than what I used to see. I see something amazing and holy. I feel a stirring inside of me that I have never felt. I see and feel God when I see the rays shining through the clouds, the chickadee in the pine tree, the beautiful pattern on the carpet at work from the sun shining through the window or when I see the stars in the sky. I feel a joy inside that I can’t explain when I look at things that to another person, may seem like nothing. It makes me feel guilty at times. How can I have moments of joy after losing my son and watching Andrew deal with the same complications as Christian did?

When we lean on the Lord, the amazing happens. The journey of grief is far from easy but we do not have to endure it alone. God heals us. God loves us.

As I listened to a song by Deathcab for Cutie, which Christian also enjoyed, I heard guitar melodies I didn’t hear before. Music touches me at a deeper level, bringing me to tears or making me want to get up and dance (listen to Stolen Dance by Milky Chance and you’ll know what I mean). Just knowing Christian and caring for him has given me a deep appreciation for life. I want to reach out and help those who have lost a loved one and I pray and I cry for them. I will not waste my pain. Instead I will find a way to help in a way that I know Christian would be proud of. I hope my posts offer a bit of hope and remind you that you are never alone.

Let’s Go Racing!

Tomorrow is the Daytona 500. We are usually excited but even more so this year since we will be going to the race in Las Vegas next month. When we received our tickets it was bittersweet because only three arrived in the mail instead of four.

In years past, we invited friends over to watch the race or made sure we had plenty of pizza and snacks to celebrate. Over the years the boys started watching more races and picked their favorite drivers. Drew is a Dale Earnhardt Jr. fan and Christian liked Jeff Gordon. You can imagine our disappointment when Jeff Gordon announced his retirement, which just happened to be the year after we lost Christian. It was bizarre seeing Jeff Gordon in the announcers booth with a suit on instead of on pit road in his fire suit. I know Christian would have been bummed out not seeing the Dupont car on the track.

Since we lost Christian, I cannot hold the tears back as the National Anthem is performed or when Darrell Waltrip yells “Boogity, Boogity, Boogity! Let’s go racing!” I would like to share some photos of our trips to Las Vegas to see the race. Christian and I just loved it when Darrell would yell at the beginning of each race so if you get the chance to tune in, even just for the “Boogity,” say it out loud for my son. Enjoy!

Christian wore this shirt almost every Sunday. We set it out for the Daytona race last year.

055 — I became a Brad Keslowski fan after this moment. He pushed the table aside for the picture and was very kind and patient.

Kurt Busch was the first driver the boys ever met. I am thankful he took a few moments for this photo.

074 — Dave and Drew all smiles as we wait for the green flag.

Christian said meeting Michael Waltrip was the highlight of his last trip to Vegas! The smiles say it all.

The Silver Lining

Too many people miss the silver living because they’re expecting gold. -Maurice Setter

When I got married, my husband and I had it all planned out – we would have careers, at least three kids, and we would be the best parents we could be (supportive, encouraging, and active in our children’s lives). The career part worked out eventually. We were young, moved a lot, and anyone who has been in the military knows how difficult it can be to adjust to civilian life. We had two sons and always did everything we could to keep the boys active, healthy and happy.

Fairmont Hot Springs 2003_0187 — We took a trip to Fairmont Hot Springs in 2003

When the boys were diagnosed in 2001 with Duchenne Muscular Dystrophy, our dreams started to shatter. Our boys never learned to ride a bicycle with two wheels, they were never able to learn how to drive, or able to participate in team sports. I worked at a title company for a few years before I had to leave to care for the boys due to the progression of their disease. I watched them lose the ability to walk, stand, raise their arms above their heads and I had to feed my oldest son during the last two years of his life. We had to constantly adjust to our new “normal” as the boys needed more and more help with the things most of us take for granted.

Towards the end of Christian’s life, I had more and more difficulty finding the silver lining. It was easier when the boys were younger – so easy to say it would never happen to us. “A cure will arrive in time.” “The disease will stop.” “If I take the best care of the boys that I can, even at the cost of my own health, I can make this monster go away.”

I became miserable because I was focused on the gold that we never found. I can look back now and see that Christian looked for that silver lining up until the last night of his life. He asked me that night if we could take a day trip to Lewistown. He still had hope.

Christian’s smile will always be a gift to all of us

After losing Christian and continuing to watch Andrew deal with some of the same issues and complications Christian dealt with, you would think that the silver lining would be gone for good. How can I see anything good come out of losing my son? What kind of person would that make me? There isn’t a single cell in my body that could possibly be glad my son passed away.

As hard as it is for me to admit, there is still a silver lining. There will never be gold, but I’m okay with that. What is the silver lining? It is contained in the little things – the things that Christian taught me to appreciate. Things like music, a bird on the feeder, sunshine on my face, a chance to make someone smile or laugh, the quiet moments during the day, a cup of hot coffee, being able to spend time with an old friend, or watching a good movie with my family. I can be thankful that Christian is no longer suffering and that he didn’t have to pass away at the hospital, that he will never have to worry about another doctor appointment again, or see fear in my face as I watched him fade, that he is with the Lord, that he is at peace, and that he will only know love.

It is far too easy to focus on what we don’t have instead of what is under our very noses. The all or nothing approach to life only leads to disappointment. What if we were to do our very best with what we have? Why not focus on what a person did right today instead of on what they did wrong last week? If we expect our lives to be perfect, we will miss the miracles – the miracles that surround us each and every day.